This book provides a comprehensive overview of palliative care digital health by covering current developments, methodology, clinical relevance, research priorities, ethical issues, and policy related to technological innovations for those with serious illness. This type of book does not currently exist in the literature, as previous work primarily focuses on digital health for early identification of disease and facilitating self-care or 'aging in place' practices. This book addresses the lack of focus on digital health for people with palliative care needs. This book has a special focus on the needs of individuals as their health worsens throughout their illness. Consequently, the reader will benefit from this book's focus on the science, methodology, application, and practicality of digital health developments in palliative care.
This book explores the barriers that prevent the meaningful use of digital health in palliative care, including expenses, interoperability issues, data privacy and security concerns, lack of effectiveness and equity, and the concern that technology may reduce face-to-face consultations between patients and clinicians. There is an overall lack of consensus about digital health research priorities in palliative care, and a lack of theories about how these technologies might improve care outcomes. Therefore, this book emphasizes the importance of identifying, discussing, and debating how technological innovations can be meaningfully used to ensure that frail people have appropriate access to palliative care services. Consequently, this book begins the conversation about articulating digital health research priorities in palliative care to determine how finite resources should be allocated to a field saturated with rapidly developing innovation.
Reihe
Sprache
Verlagsort
Verlagsgruppe
Springer International Publishing
Illustrationen
1
36 farbige Abbildungen, 1 s/w Abbildung
VIII, 130 p. 37 illus., 36 illus. in color.
ISBN-13
978-3-032-04277-4 (9783032042774)
Schweitzer Klassifikation
Amarachukwu (Amara) Callistus Nwosu
Dr. Amara Nwosu is a Senior Clinical Lecturer in Palliative Care at Lancaster University, and Research Lead for Marie Curie North West. Amara is an Honorary Clinical Consultant in Palliative Care at Liverpool University Hospitals NHS Foundation Trust. Amara is an Honorary Senior Clinical Lecturer of the University of Liverpool. Amara's research focuses on digital health in palliative care. In 2023, Amara completed a Churchill Fellowship in the USA and the Netherlands, researching palliative care digital health.
Sarah Stanley
Sarah Stanley is a research nurse at Marie Curie UK. Sarah is experienced in palliative care nursing and clinical research. In 2018, Sarah received the Marie Curie Susie Wilkinson Award in recognition of her research development. Sarah is undertaking a PhD at Liverpool John Moores University, which explores digital legacy in end-of-life care advance care planning from the perspective of service users, caregivers, bereaved people and healthcare professionals.
James Norris
James is an 'End of Life Technologist.' He founded the not-for-profit, Digital Legacy Association (DLA) in 2015. James conducts research, training, and develops best practice frameworks in digital assets planning and digital legacy safeguarding at the DLA. James is the founder of MyWishes, a public health intervention, that provides digital approaches to advance care planning and end of life planning. James is based at Harlington Hospice's Inpatient Unit, Michael Sobell House, in North London.
Mark Taubert
Professor Mark Taubert is a hospital consultant & clinical director at Velindre Cancer Service in Cardiff, Wales. He has academic roles at Cardiff University, is the founder of TalkCPR.com, and chairs the national Future Care Planning strategy group for the National Health Service in Wales. Mark is the Vice-President of the European Association for Palliative Care, a Brussels-based Non-Governmental Organization (NGO). Mark is a fellow of the Learned Society of Wales.
