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Written by leading experts in palliative care and respiratory medicine, the chapters seek to answer those objectives by first defining and describing palliative care, advanced lung disease, and inadequate palliative care in this patient population. Patient reported outcomes, quality of life, and interventions to help deal with the psychological toll of serious illness are then detailed, as well as pharmacological and non-pharmacological interventions for symptom management. Detailed information is additionally provided on current research studies and management for several lung diseases, including COPD, ILD, Lung Cancer, Pulmonary Arterial Hypertension, Neuromuscular disease, and pediatric lung disease. The more administrative aspects of palliative care programs are then covered with an example of a specialty palliative care program for advanced lung disease and advice on how to address policy that promotes palliative care. Finally, palliative care's role during a pandemic is thoughtfully considered.
This book is an ideal guide for clinicians, nurses, hospital administrators, teachers, students to help them understand and fill unmet care needs that many patients with serious lung disease experience.
Sonye Karen Danoff, MD, PhD, FCCP, ATSF is an Associate Professor of Medicine at Johns Hopkins, Co-Director of the Johns Hopkins Interstitial Lung Disease/Pulmonary Fibrosis Program and Associate Director of the Johns Hopkins Myositis Center.
Palliative Care in Lung Disease.- An Introduction to Advanced Lung Disease.- Inadequate Palliative Care in Lung Disease.- Patient-Centeredness & Patient Reported Measures (PRM) in Palliation of Lung Disease.- Quality of Life in Chronic Lung Disease.- Breathlessness.- Preparatory and anticipatory grief, anxiety and depression in life-limiting lung disease.- Symptom Management in Advanced Lung Disease.- Communication in Palliative Care.- Palliative Care in COPD.- Palliative care in interstitial lung disease.- The Role of Palliative Care in Lung Cancer.- Palliative care in patients with neuromuscular diseases.- Palliative Care in Pulmonary Arterial Hypertension.- Palliative Care for Children with Lung Diseases.- Specialty Palliative Care Program ILD.- Withdrawal of Mechanical Ventilation: Considerations to Guide Patient and Family Centered Care and the Development of Health Care Policy.- Palliative Care during a Pandemic.
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