Contributors
Foreword
Preface
Acknowledgments
About the Art and Artists
SECTION 1: UNDERSTANDING PALLIATIVE CARE
1. Advancing Palliative Care to Perinatal and Neonatal Settings
2. Neonatal and Perinatal Palliative Care Services and Programs
3. Creating Seamlessness in Palliative Care Services
SECTION 2: CARING FOR THE WHOLE FAMILY IN PALLIATIVE CARE
4. Comfort in Perinatal and Neonatal Palliative Care: An Innovative Plan of Care Focused on Relational Elements
5. Suspending Judgment: Being With and Knowing the Family
6. Helping Siblings Connect, Relate, and Say Goodbye
7. Barriers to Referring Patients for Perinatal Palliative Care
SECTION 3: PLANNING AND DECISION-MAKING
8. Communicating Devastating News
9. Grief and Memories Begin With Diagnosis
10. Anticipatory Guidance: Birth and Advance Care Planning
11. Difficulty in Predicting Survival: Genetics and Genetic Counseling
12. "Compatible With Love": Qualitative Analysis of Decision-Making Rationale of Parents Who Continue a Pregnancy Affected by a Life-Limiting Fetal Condition
13. Perinatal Regoaling in the Face of Serious Illness: Hopeful Thinking, Good-Parent Beliefs, and Uncertainty
14. Building and Sustaining Relationships During Pregnancy
SECTION 4: PHYSICAL ASPECTS OF PALLIATIVE CARE: DIAGNOSIS, TREATMENT, AND OUTCOMES
15. Attending to Pain and Suffering in Palliative Care
16. Managing Pain and Discomfort in the Mother
17. Perinatal Palliative Care in the Context of Fetal or Neonatal Surgery
18. Palliative Care at the Time of Unexpected Premature Delivery
19. Compassionate Extubation and Withdrawal of Life-Sustaining Therapies
SECTION 5: SUPPORTING FAMILIES AND CARE PROVIDERS THROUGH THE NUANCES OF PALLIATIVE CARE
20. Lactation and Breastfeeding in the Context of Perinatal Palliative Care
21. Ten Ethical Principles for Neonatal Palliative Care
22. Spirituality: The Effects of Another's Pain and Suffering on Care Providers
23. Assessing Perinatal Grief Intensity in the Palliative Care Setting
24. Strategies to Honor Professional Well-Being in Perinatal and Neonatal Care
Appendix: National Palliative Care Organizations and Resources
Index
