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Oncology Informatics: Using Health Information Technology to Improve Processes and Outcomes in Cancer Care encapsulates National Cancer Institute-collected evidence into a format that is optimally useful for hospital planners, physicians, researcher, and informaticians alike as they collectively strive to accelerate progress against cancer using informatics tools.
This book is a formational guide for turning clinical systems into engines of discovery as well as a translational guide for moving evidence into practice. It meets recommendations from the National Academies of Science to "reorient the research portfolio" toward providing greater "cognitive support for physicians, patients, and their caregivers" to "improve patient outcomes." Data from systems studies have suggested that oncology and primary care systems are prone to errors of omission, which can lead to fatal consequences downstream. By infusing the best science across disciplines, this book creates new environments of "Smart and Connected Health."
Oncology Informatics is also a policy guide in an era of extensive reform in healthcare settings, including new incentives for healthcare providers to demonstrate "meaningful use" of these technologies to improve system safety, engage patients, ensure continuity of care, enable population health, and protect privacy. Oncology Informatics acknowledges this extraordinary turn of events and offers practical guidance for meeting meaningful use requirements in the service of improved cancer care.
Anyone who wishes to take full advantage of the health information revolution in oncology to accelerate successes against cancer will find the information in this book valuable.
Bradford (Brad) Hesse was appointed Chief of the National Cancer Institute's (NCI) Health Communication and Informatics Research Branch (HCIRB) in November, 2006. He served as the Acting Chief of HCIRB from 2004-2006.
Dr. Hesse's professional focus is bringing the power of health information technologies to bear on the problem of eliminating death and suffering from cancer, a cause to which he remains steadfastly dedicated. While at the NCI, he has championed several initiatives that evaluate and progress the science of cancer communication and informatics, including the Health Information National Trends Survey (HINTS) and the Centers of Excellence in Cancer Communication (CECCR).
As director of NCI's biennial Health Information National Trends Survey (HINTS), Dr. Hesse is responsible for leading a team of scientists in the development and execution of this nationally representative, general population survey of American adults. HINTS, now entering its fourth iteration, systematically evaluates the public's knowledge, attitudes and behaviors relevant to cancer control in an environment of rapidly changing communication technologies.
Dr. Hesse also serves as the program director for NCI's Centers of Excellence in Cancer Communication Research (CECCR). This initiative supports the research of four centers aimed at increasing the knowledge of, tools for, access to, and use of cancer communications by the public, patients, survivors, and health professionals. The centers have been instrumental in defining the next generation of interdisciplinary collaboration in cancer communication science.
Prior to his work at NCI, Dr. Hesse conducted research in the interdisciplinary fields of human computer interaction, health communication, medical informatics, and computer-supported decision making. In 1988, he served as a postdoctoral member of the Committee for Social Science Research on Computing at Carnegie Mellon University, and subsequently co-founded the Center for Research on Technology at the American Institutes for Research in Palo Alto, California in 1991. Working in a contract environment before coming to NCI, Dr. Hesse directed projects for the Departments of Education and Labor, the Centers for Disease Control and Prevention, and the National Institutes of Health. He has also provided usability services to Apple Computer, Hewlett Packard, Xerox, Microsoft, Sun, and Netscape.
Dr. Hesse currently serves on the board of advisors for the American Psychological Association's online resource, PsycINFO, and is a member of the American Psychological Society, the Association for Computing Machineries, Special Interest Group on Human Computer Interaction (SIG-CHI), the American Medical Informatics Association, the International Communication Association, and the Usability Professionals Association.
I. An Extraordinary Opportunity 1. Creating a Learning Health Care System in Oncology 2. Reducing Cancer Disparities Through Community Engagement: The Promise of Informatics 3. Cancer Clinical Research: Enhancing Data Liquidity and Data Altruism 4. Engaging Patients in Primary and Specialty Care 5. Coordination at the Point of Need
II. Support across the Continuum 6. Prevention, Information Technology, and Cancer 7. Early Detection In The Age of Information Technology 8. Informatics Support Across the Cancer Continuum: Treatment 9. Survivorship 10. Advanced Cancer: Palliative, End of Life, and Bereavement Care
III. Science of Oncology Informatics 11. Data Visualization Tools for Investigating Health Services Utilization Among Cancer Patients 12. Oncology Informatics: Behavioral and Psychological Sciences 13. Communication Science: Connecting Systems for Health 14. Cancer Surveillance Informatics 15. Extended Vision for Oncology: A Perceptual Science Perspective on Data Visualization and Medical Imaging
IV. Accelerating Progress 16. Crowdsourcing Advancements in Health Care Research: Applications for Cancer Treatment Discoveries 17. Patient-Centered Approaches to Improving Clinical Trials for Cancer 18. A New Era of Clinical Research Methods in a Data-rich Environment 19. Creating a Health Information Technology Infrastructure to Support Comparative Effectiveness Research in Cancer 20. Editors' Conclusion: Building for Change
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