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Andrew Hadler is a Consultant Forensic Psychiatrist with Sussex Partnership NHS Foundation Trust, UK and Honorary Lecturer at Brighton and Sussex Medical School.
Stephen Sutton is Professor of Behavioural Science and Head of the Behavioural Science Group at the Institute of Public Health, University of Cambridge, UK.
Lars Osterberg is Associate Professor (Teaching) at Stanford University School of Medicine, USA, and a Staff Physician at the Veterans Administration Palo Alto Health Care System.
Foreword viii
Preface x
Notes on Authors xiii
Notes on Contributors xiv
Acknowledgments xxv
Introduction 1
Section I Background 15
1 Treatment Engagement and Adherence: A Review of the Literature 17Christiana O. Oshotse, Hayden Barry Bosworth, and Leah L. Zullig
2 What Do Patients Want? Patient Satisfaction and Treatment Engagement 33Ann E. Webb and Robin E. Gearing
3 Values-based Practice and Patient Engagement: Linking Science with People 58Bill (K.W.M.) Fulford
4 Informed Consent and the Law: From Patient Compliance to Patient Engagement? 75Richard Huxtable
5 Assessing, Measuring, and Monitoring Treatment Engagement 92Donald E. Morisky and Chia-Hsin Emily Cheng
Section II Understanding Treatment Engagement 109
6 Addressing the Challenges of Neurocognitive Impairment (NCI) on Treatment Engagement 111Roman Shrestha, Pramila Karki, and Michael Copenhaver
7 Self-determination Theory and Autonomy Support to Change Healthcare Behavior 141Martin S. Hagger and Cleo Protogerou
8 Attachment Theory, the Therapeutic Alliance, and Treatment Engagement 159Katherine Berry and Adam Danquah
9 Clinical Case Formulation of Suboptimal Engagement 172Lawrence Jones and Sunita Guha
10 The Contribution of Beliefs to Treatment Engagement 188Vivian Auyeung, Lyndsay D. Hughes, and John A. Weinman
Section III Practical Approaches to Enhance Engagement 203
11 Medication and Treatment Beliefs as Determinants of Treatment Engagement 205Rob Horne
12 Cognitive Behavioral and eHealth Approaches to Promote Engagement in Treatment 223M. Bryant Howren, Anne I. Roche, and Alan J. Christensen
13 Enhancing Treatment Engagement Through Motivational Interviewing 243Stanley R. Steindl and Jason P. Connor
14 Positive Approaches to Promote and Support Changes in Health Behavior 259Emily G. Lattie and Anne Cohen
15 Communication Skills to Engage Patients in Treatment 274Mollie A. Ruben, Danielle Blanch-Hartigan, and Judith A. Hall
16 Understanding Some Psychodynamic Factors Involved in Suboptimal Engagement 297Geoffrey P. Taylor and Deborah L. Cabaniss
17 Enhancing Wellbeing and Motivation for Staff Working with Patients Who Have Inconsistent or Challenging Engagement in Services 313Alex Lord
Section IV Treatment Engagement in Specific Client Groups 335
18 Engaging Patients from Diverse Backgrounds in Healthcare Treatment 337Aswita Tan-McGrory, Andrea O. Madu, Karey S. Kenst, and Joseph R. Betancourt
19 Enhancing Treatment Adherence in Young People with Chronic Diseases 354Michael A. Rapoff and Ali Calkins-Smith
20 Enhancing Treatment Engagement in Older Adults 365Jo Anne Sirey and Patricia Marino
21 Treatment Engagement and People with Intellectual Disability 381Roger J. Stancliffe, Seeta Durvasula, Nathan J. Wilson, and Peter Lewis
22 Promoting and Maintaining Engagement in Substance Abuse Treatment 399Nikolaj Kunøe
23 Working with People with Mental Health Difficulties to Improve Adherence to Medication 430Thomas R.E. Barnes and Peter M. Haddad
24 Engaging Socially Excluded Individuals and Communities in Healthcare 455Jed Boardman and David Morris
25 Understanding and Overcoming Barriers to Treatment Engagement in Lower-income Countries 477Andrew L. Ellner, Jessica L. Alpert, Chris Desmond, and Ashwin Vasan
Section V Designing and Delivering Services to Optimize Patient Engagement 503
26 Treatment Engagement: The Experience of Users of Health Services 505Dolly Sen
27 Recovery from Ill Health from an Occupational Perspective 515Wendy Bryant and Maggie Winchcombe
28 Achieving Patient Engagement Through Shared Decision-making 531Paul Barr, Glyn Elwyn, and Isabelle Scholl
29 Optimizing Service Delivery to Enhance Treatment Engagement 551Sharon Lawn
30 Patient Engagement in Treatment in an Information Age 568Fiona Stevenson and Maureen Seguin
31 Governing by Risk, or Why Interventions to Improve Health Fail 582Paul Crawshaw
Afterword: Future Directions 597
Index 602
Jessica L. Alpert is a case writer and researcher at the Harvard Medical School Center for Primary Care, Boston, Massachusetts.
Vivian Auyeung is Senior Lecturer in Medicines Use at the Institute of Pharmaceutical Science, King's College London. Her research aims to integrate the disciplines of health psychology with pharmacy; specifically, tackling the problem of medicines non-adherence by designing and testing scalable and sustainable pharmacy-led solutions based on psychological theories.
Thomas R.E. Barnes is Emeritus Professor of Clinical Psychiatry at Imperial College, London, and joint head of the Prescribing Observatory for Mental Health at the Royal College of Psychiatrists. His research in schizophrenia and its treatment has generated over 300 publications. He is a co-editor of?The Maudsley Prescribing Guidelines in Psychiatry and has been a member of schizophrenia treatment guideline development groups for both the National Institute for Health and Care Excellence and the British Association for Psychopharmacology.
Paul Barr is a member of Faculty at the Dartmouth Institute for Health Policy & Clinical Practice, Hanover, New Hampshire, where he leads the "Open Recordings" research group. He is a health-services researcher, promoting greater transparency in healthcare and working at the intersections of technology, patient- and family-centered communication and shared decision-making. He is the recipient of the Gordon and Betty Moore Patient and Family Engagement Award. Paul received his PhD (Public Health) and BSc (Psychology) from Queen's University, Belfast, Ireland, and received an MSc in Public Health (Health Services Research stream) from the London School of Hygiene and Tropical Medicine, London UK.
Katherine Berry is a senior lecturer and clinical psychologist who is based at the University of Manchester. Her main area of expertise is attachment theory and therapeutic relationships in people with a diagnosis of psychosis. She currently works on the Manchester Clinical Psychology Training Programme and as a clinical psychologist in mental health rehabilitation.
Joseph R. Betancourt MD MPH is the founder and director of the Disparities Solutions Center, Senior Scientist at the Mongan Institute for Health Policy at Massachusetts General Hospital, and an Associate Professor of Medicine at Harvard Medical School. Dr. Betancourt has authored peer-reviewed articles on topics including racial/ethnic disparities in health and healthcare; public health; cross-cultural care and education; clinical decision-making; ethics; workforce diversity; and the impact of language barriers on healthcare.
Danielle Blanch-Hartigan PhD MPH is Assistant Professor of Health Studies in the Department of Natural and Applied Sciences and Director of the Health Thought Leadership Network at Bentley University in Waltham, Massachusetts. Danielle holds a PhD in Psychology from Northeastern University, a Masters in Public Health from Harvard School of Public Health and completed postdoctoral training as a Cancer Prevention Fellow in the Behavioral Research Program and Office of Cancer Survivorship at the National Cancer Institute. Her interdisciplinary research in psychology and public health aims to understand patient perceptions and improve the patient-care experience. Dr. Blanch-Hartigan has published over 45 articles in peer-reviewed journals across psychology, health communication, and medicine.
Jed Boardman is a psychiatrist and Senior Lecturer in Social Psychiatry at the Institute of Psychiatry, Psychology, and Neuroscience. He is Senior Policy Adviser at the Centre for Mental Health and lead for Social Inclusion at the Royal College of Psychiatrists where he advises on employment and welfare benefit matters. He chaired the Royal College of Psychiatrists Social Inclusion Scoping Group.
Hayden Barry Bosworth is the Associate Director of the Center for Health Services Research in Primary Care at the Durham Veterans Affairs Healthcare System. He is also a Professor of Medicine, Psychiatry, Population Health Science, and Nursing at Duke University Medical Center. His research provides knowledge for improving patients' treatment adherence and self-management in chronic care. Dr. Bosworth has authored over 280 peer-reviewed publications, over 70 of which address treatment adherence.
Wendy Bryant, is Senior Lecturer and Subject Lead for Occupational Therapy at the University of Essex. Wendy has practiced as an occupational therapist since 1984 in a wide range of UK settings including social care. Her research has been focused on collaborating with service users and providers, using participatory and creative methods.
Deborah L. Cabaniss MD is Professor of Clinical Psychiatry and Associate Director of Residency Training in the Columbia University Department of Psychiatry. In that role she teaches psychodynamic psychotherapy to residents and coordinates teaching and supervising of psychotherapy in the residency. She is the winner of numerous teaching awards and is a Training and Supervising Analyst at the Columbia University Center for Psychoanalytic Training and Research. Her books, Psychodynamic Psychotherapy: A Clinical Manual and Psychodynamic Formulation, are widely used and translated.
Ali Calkins-Smith received her PhD in Clinical Psychology with a Major Area of Study in Clinical Health Psychology from the University of Kansas in 2018. She completed her Pre-doctoral Clinical Internship and Post-doctoral Fellowship at Children's Mercy Hospital in Kansas City, Missouri. Her research and clinical interests are both broadly in the area of pediatric psychology with specific interests in adherence and pediatric chronic pain. Her dissertation was titled, "Adherence Behaviors in Youth Following the Completion of an Intensive Pain Rehabilitation Program." Dr. Calkins-Smith became licensed in 2019 and started her first position as the sole psychologist in a well-established primary care pediatric office in Kansas.
Chia-Hsin Emily Cheng is Lecturer of Psychology and Health Science at California State University, Fullerton. She has served as co-principal investigator of a CDC funded interdisciplinary obesity research project and as evaluation analyst on several health promotion programs in minority communities. She is on the editorial board of the Californian Journal of Health Promotion and is a doctoral candidate at the University of California, Los Angeles.
Alan J. Christensen PhD is Professor and Collegiate Fellow in the Department of Psychology and Professor in the Department of Internal Medicine at the University of Iowa. He currently serves as Editor-in-Chief of the Journal of Behavioral Medicine and is a Past President of the Society of Behavioral Medicine. He has studied issues involving patient treatment adherence and self-management in chronic illness for over three decades.
Anne Cohen is a current Masters Student in the?Nutrition?and Exercise Physiology program at Teachers College, Columbia University and has a BA in?Behavioral Biology?from Johns Hopkins University. She previously worked as a Research Assistant at the Center for Behavioral Intervention Technologies at Northwestern University.
Jason P. Connor is a clinical psychologist, Director of the Centre for Youth Substance Abuse Research, and Professor of Clinical and Health Psychology at the University of Queensland.
Michael Copenhaver is a Professor of Health Promotion in the Department of Allied Health Sciences and a principal investigator at the Institute for Collaboration on Health, Intervention, and Policy (InCHIP) at the University of Connecticut, and a licensed clinical psychologist in Connecticut. He conducts primarily NIH/NIDA-funded research aimed at developing and adapting evidence-based behavioral HIV prevention interventions for optimal use in real world clinical settings (drug treatment, prison) where high-risk drug users may be more efficiently reached. Dr. Copenhaver has been at the University of Connecticut since 2002.
Paul Crawshaw is Professor of Sociology and Dean of the School of Social Sciences, Humanities and Law at Teesside University, UK. A medical sociologist by training, he has published extensively on health improvement interventions, behavioural change, and sociologies of risk in a range of international journals, including Social Science and Medicine and Critical Social Policy. A former editor of Critical Public Health, he continues to contribute substantially to debates on health, wellbeing, and social policy, with particular interest in complex interventions.
Adam Danquah is a Lecturer in Clinical Psychology at the University of Manchester. He has particular interests in attachment theory and psychoanalysis. Clinically he works in secondary care adult mental health for Pennine Care NHS Foundation Trust. As well as being a Clinical Psychologist, Adam is a Psychodynamic Psychotherapist.
Chris Desmond is the Director of the Centre for Liberation Studies in Durban, South Africa.
Seeta Durvasula is a Senior Lecturer in the Faculty of Medicine and Health, University of Sydney. She is also the Clinical Director of two specialized multidisciplinary health clinics for people with intellectual disability and complex health conditions. Seeta has over 30 years of...
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