Buying your Self on the Internet

Table of Statutes Table of Cases






Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology

Introduction
Aims of This Book
Guidance for Readers
What Is Personal Genomics or Direct-to-Consumer Genetic Testing?
Summary of How DTC Services Operate
Bringing Disruptive Technology to the Public
Data Deluge
Methodology
How Should the DTC Industry Be Regulated? The Policy Response to Date
Sources of Law Which Might Be Applicable to DTC in the UK and EU
What Can Go Wrong?
Conclusion





The Science behind that Click of the Mouse

Introduction
The Nature of Genetic Information and Genetic Exceptionalism
Recent Advances in Genetic and Genomic Science
Conclusion





The Rise of Personal Genomics - Overview of the Direct-to-Consumer Genetic Testing Industry

Introduction
Overview of the DTC Industry
Health Tests
Ancestry Testing
Genetic Relatedness Testing
Testing for Athletic Ability
Testing for Child Talent and Testing of Children
Surreptitious ('Infidelity') Testing
Match Making Testing
Conclusion





Privacy, Data Protection, and Security in the Context of Direct-to-Consumer Genetic Testing Services

Introduction
General Data Protection Regulation (GDPR)
The UK's Data Protection Legislation
Privacy Policies and Notices and Website Design
US Privacy Law
Canadian Genetic Privacy Law
Secondary Use of Genetic Databases - the Golden State Killer and Beyond
Indigenous Peoples and Data Sovereignty
Privacy Best Practices for Consumer Genetics Testing Services (July 2018)
Conclusion





Clicking Away Rights in DNA: A Review of DTC Contracts

Introduction
Challenging Unfair Terms in DTC Contracts
Conclusion





Future Directions for DTC Governance

Note for Readers Interested in Purchasing DTC Tests
Suggestions for Reform
Final Thoughts







Bibliography