Psychosocial Aspects of Sickle Cell Disease presents the most current evaluations and research on biopsychosocial influence and interventions for persons with sickle cell disease. A major step forward in better understanding sickle cell and its ramifications, this innovative book is the first to use the biopsychosocial model as its frame of reference. This model takes into account the biological, psychological, and social influences on persons with sickle cell. The interdisciplinary research in this book begins the process of defining effective comprehensive care programs for those affected by sickle cell disease. This important book consolidates the available research on this topic for busy clinicians and for researchers doing further investigation in this area.This is the first interdisciplinary group effort to collaborate on a holistic approach to comprehensive care for the sickle cell population. Psychosocial Aspects of Sickle Cell Disease promotes team effort and systematically explores the quality of life issues confronting practitioners and service providers. This groundbreaking book answers practitioners'questions regarding service provision, program development, and further research in the psychosocial issues of sickle cell disease. Included among the chapters are examinations of such issues as:
effects of sickle cell disease over the lifespan
school adjustment
family relations
adolescents
mutual support and self-help
adult population
emergency services
policy issues
future research directions and methodology for studying sickle cell diseaseAll experts in the human services profession will find this comprehensive information on psychosocial issues invaluable when facing issues such as medical treatment for patients, education about sickle cell disease, counseling, pain management therapy, and occupational therapy, and support services such as housing, transportation, legal services, recreational services, and financial services. Health educators, guidance counselors, nurses, physicians, psychiatrists, psychologists, and social workers will find the information in Psychosocial Aspects of Sickle Cell Disease critical to a comprehensive understanding of the individual affected by sickle cell disease, and ultimately to the development of comprehensive care.
Sprache
Verlagsort
Verlagsgruppe
Zielgruppe
Für höhere Schule und Studium
Für Beruf und Forschung
Gewicht
ISBN-13
978-1-56024-578-0 (9781560245780)
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Schweitzer Klassifikation
Contents
I. Overview
Introduction
Natural History of Sickle Cell Disease and the Effects on Biopsychosocial Development
II. General Issues
Behavioral Assessment of Sickle Cell Disease Pain
Depression and Anxiety in Patients With Sickle Cell Disease: Conceptual and Methodological Considerations
The Role of Social Support in Compliance and Other Health Behaviors for African Americans With Chronic Illnesses
III. Individual, Age Specific Issues
Factors in the Long Term Adjustment of Children and Adolescents With Sickle Cell Disease: Conceptualizations and Review of the Literature
Risk and Resilience in Adjustment to Sickle Cell Disease: Integrating Focus Groups, Case Reviews, and Quantitative Methods
Scholastic Performance of Children With Sickle Cell Disease
Adaptation and Coping: A Look at a Sickle Cell Patient Population Over Age 30--An Integral Phase of the Life Long Developmental Process
IV. Family Issues
Relationships in Families of Children and Adolescents With Sickle Cell Disease
The Importance of Grandparents in Extended-Kin Caregiving to Black Children With Sickle Cell Disease
V. Community and Systems Issues
The Sickle Cell Mutual Assistance Movement
Perceptions of Ethnic and Cultural Factors in the Delivery of Services in the Treatment of Sickle Cell Disease
Sickle Cell Mutual Assistance Groups and the Health Services Delivery System
Epilogue
Index
Reference Notes Included
