This volume focuses on topics at the intersection between neuroethics and neurodevelopment, and brings together the perspectives of experts in both clinical assessment and intervention, and researchers in child psychology, neurosciences, medicine, health policy, law, and social work. The goal is to review emerging issues related to the ethical ramifications of how variation in human neurodevelopment is described, and the effects of these descriptions on those with lived experience, clinical and intervention services, and health and social policy. Related topics are also explored including the effect of the Covid-19 pandemic, the ethics of invasive neurotechnology interventions, biomarkers, machine learning, precision medicine.
Rezensionen / Stimmen
"...present[s] the current issues found within neuroethics and neurodevelopment, [and] offers insights from leading experts on how to progress the conversation... [Also] presents a beneficial discussion about consent within the pediatric realm, specifically within this population. Additionally, the use of biomarkers to potentially help with the early installation of resources is an interesting proposal and contrasts well with the potential for misuse of the information or unintentionally backfiring and causing harm. Finally, this book broadens the scope of focus to help to the families and caretakers of the children, a point often overlooked... useful for new practitioners looking to work with the neurodiverse pediatric population." -- (c)Doody's Review Service, 2024, Robert Cowan, MD (Stanford University School of Medicine)
Reihe
Sprache
Verlagsort
Verlagsgruppe
Elsevier Science & Technology
Zielgruppe
Maße
Höhe: 229 mm
Breite: 152 mm
Gewicht
ISBN-13
978-0-323-99392-0 (9780323993920)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Klassifikation
Dr. W. Ben Gibbard is an Associate Professor in the Department of Pediatrics at the Cumming School of Medicine, University of Calgary. He is also the Section Chief for Developmental Pediatrics at the Alberta Children's Hospital. Research interests include topics in neuroethics and developmental pediatrics, pediatric complex care coordination, and understanding fetal alcohol spectrum disorders in the context of other cumulative adverse exposures.
Herausgeber*in
Department of Pediatrics, Cumming School of Medicine, University of Calgary; The Alberta Children's Hospital Research Institute and the Owerko Centre, The University of Calgary.
Introductory Note Katherine Bassil and Judy Illes Preface William Ben Gibbard Section I: Description and Diagnosis 1. The Language of Developmental Disability Vikram K. Jaswal and Susan A. Graham 2. Attribution: a pervasive but epistemically challenging activity in the practice of Developmental Pediatrics Anton R. Miller 3. First do no Harm: Cautionary Reflections on the Assessment and Diagnosis of Neurodevelopmental Disorders William Ben Gibbard, Andrea Ryce and Nancy Lanphear 4. Language Use and Identity Formation in Autistic Persons Adam McCrimmon, Brittany Lorentz, Keelin McKiernan, Jeffrey MacCormack and Heather M. Brown 5.Disrupted life narratives of children in care with neurodevelopmental disabilities: Whose story is it? Christina Darlene Tortorelli, Peter Choate and Dorothy Badry Section II: Clinical Neuroscience and Policy 6. Invasive Neurotechnology for Neurodevelopmental Disorders Youngkyung Jung, George Ibrahim and Patrick Joseph McDonald 7. Ethical Considerations for Biomarkers of Fetal Alcohol Spectrum Disorder and Other Neurodevelopmental Disorders Alexandre A. Lussier and Joanne Weinberg 8. Neuroethics Considerations for Precision Medicine and Machine Learning in Neurodevelopmental Disorders Emma A.M. Stanley, Nils Daniel Forkert and Sarah J. MacEachern 9. The Impact of the COVID-19 Pandemic on People with Neurodevelopmental Disabilities and their Families Brianne Redquest, Stephanie Andreasen, Kailyn Turner and Carly McMorris 10. Children with Neurodisabilities and Public Policy: Universal Design for Function Rather than Diagnosis Stephanie Chipeur and Jennifer Zwicker
