Quality of Life and Human Difference
Genetic Testing, Health Care, and Disability
1st Edition
Published on 1. July 2005
978-0-511-11384-0 (ISBN)
Description
This study brings together two important literatures together in the one volume. One concerns the role of quality assessments in social policy, especially health policy. The second concerns ethical and social issues raised by prenatal testing for disability. Hitherto, these two literatures have had little contact with each other: few scholars have written about both, or have compared the two domains in a systematic way, while people with disabilities and disability scholars are underrepresented in recent discussion on health policy and quality of assessment. This book turns the perspectives of disability scholars on issues that have largely been the province of health methodology, policy and philosophy, while angling philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and healthcare economics.
Reviews / Votes
'... what is most interesting about this volume is that while addressing the central issues in the debate about disability and well-being, it sets this in a wider context of getting to grips with deeper theoretical issues ... In addition to addressing the particular topic at hand this collection makes a contribution more broadly to bioethics. The material on measuring health versus well-being, for example, has significant implications for the endeavors in population genetic databases that are currently being advocated.' Ruth Chadwick, Lancaster UniversityMore details
Series
Language
English
Place of publication
Cambridge
United Kingdom
Publishing group
Cambridge University Press
Target group
Professional and scholarly
Illustrations
Worked examples or Exercises
File size
1,59 MB
ISBN-13
978-0-511-11384-0 (9780511113840)
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Schweitzer Classification
Other editions
Additional editions
David Wasserman | Jerome Bickenbach | Robert Wachbroit
Quality of Life and Human Difference
Genetic Testing, Health Care, and Disability
Book
05/2005
Cambridge University Press
€61.20
Shipment within 15-20 days
David Wasserman | Jerome Bickenbach | Robert Wachbroit
Quality of Life and Human Difference
Genetic Testing, Health Care, and Disability
Book
05/2005
Cambridge University Press
€40.60
Shipment within 15-20 days
Persons
Content
Contributors; Acknowledgements; Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit; 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit; 2. Predicting genetic disability while commodifying health Anita Silvers; 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock; 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson; 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord; 6. Preventing the existence of people with disabilities Jeff McMahan; 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman; 8. The social context of individual choice Tom Shakespeare; 9. Disability and health systems assessment Jerome Bickenbach; Index.
