
Connected Digital Devices in Health
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Connected Digital Devices in Health is a collective work that reports on the deployment of digital technologies in the healthcare sector, with a view to understanding the underlying logic that has structured and organized the healthcare field and healthcare practices since the end of the 20th century.
This new volume in the "Computing and Connected Society" series examines contemporary transformations in the healthcare sector, analyzing how the dynamics that structure it are evolving in line with the accelerated deployment of digital innovations. This original analysis explores the challenges posed by these changes in terms of legal risks, social practices, the socioeconomics of ehealth, and healthcare governance through patient data. Finally, the book identifies several major evolving trends, opening up the debate on the contours of tomorrow's healthcare world.
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Persons
Dominique Carré is Professor Emeritus of Information and Communication Sciences at LabSIC, Sorbonne Paris Nord University, France. His research focuses on digital innovations and communication systems in the context of rapid industrialization and hyperconnectivity. He is also co-editor of the online journal tic&société.
Geneviève Vidal is Professor of Information and Communication Sciences at LabSIC, Sorbonne Paris Nord University, France. Her research focuses on digital uses from a sociopolitical perspective. She is also president of the Creis-Terminal association.
Content
Presentation of the Authors ix
Introduction xi
Dominique CARRÉ and Geneviève VIDAL
Chapter 1. A Sociohistorical Approach: Moving Closer Together Through Detachment from Care Practices 1
Dominique CARRÉ
1.1. The shift to ambulatory care: digitalized as a structuring framework 3
1.2. Innovation and technology: the position given to digital ICT 5
1.3. Distance and proximity: medical biology and medical imaging 7
1.4. Distance and proximity: development of remote health services between the pandemic and a shortage in care provision 9
1.5. Connected objects? 12
1.6. Connected objects at the frontiers of "well-being" and "healthcare" 14
1.7. Illustration of a "gray" zone 17
1.8. Arrival of new disruptive inputs in the healthcare field 19
1.9. Increase in data and data sovereignty in healthcare 23
1.10. Increase in sociotechnical mediations, strengthening a process of moving closer together through detachment and connected uses 25
1.11. References 28
Chapter 2. Connected Sleep: From Individualizing to Modeling the Doctor-Patient Relationship 31
Christian PAPILLOUD, Geneviève VIDAL and Yanita ANDONOVA
2.1. Methodology 33
2.2. Category A: practices and uses of digital devices and connected objects 34
2.3. Category B: doctor-patient relationships mediated by technology 44
2.4. Category C: challenges of automation in the doctor-patient relationship 51
2.5. Determining the legitimacy of monitoring technology 58
2.6. Discussion 68
2.7. Conclusion 72
2.8. References 73
Chapter 3. Digital Devices in Psychiatry and Mental Health 77
Étienne HIEN
3.1. Mental health and psychiatry 81
3.2. Projects and technical devices in psychiatry and mental health 82
3.3. Innovations in health: the question of technical determinism 88
3.4. Innovations in health: between technical solutionism and social control? 91
3.5. Economic challenges and health data security 95
3.6. Conclusion 96
3.7. References 98
Chapter 4. Connected Devices in Health: Between Mobilization, Experimentation, Assessment and Data Protection 105
Sarah SANDRÉ
4.1. The appeal of connected objects in the field of health 107
4.2. Complexity of rolling out connected objects 118
4.3. Prospects: the humanities and social sciences remain too absent from the assessment of connected devices in healthcare 127
4.4. References 128
Chapter 5. Medical Care and Data: The Example of Nanomedicine in Europe 131
Christian PAPILLOUD
5.1. Satellization or influence by alliance 133
5.2. Nanomedicine, the challenge of renewed influence 135
5.3. Doubts and decisions 138
5.4. From nanomedicine to precision medicine 141
5.5. KETs, a new challenge for satellization 144
5.6. Conclusion 151
5.7. References 152
Chapter 6. Sociopolitical Challenges of Digital Uses 159
Geneviève VIDAL
6.1. The digitalization of society 161
6.2. Acceptability, ambivalence of uses 175
6.3. Sociopolitical challenges of the relationship between healthcare and digital technology: conditional uses and the capacity to act 183
6.4. References 188
Conclusion 195
Dominique CARRÉ, Geneviève VIDAL, Christian PAPILLOUD, Yanita ANDONOVA, Étienne HIEN and Sarah SANDRÉ
List of Authors 201
Index 203
1
A Sociohistorical Approach: Moving Closer Together Through Detachment from Care Practices
To analyze the conditions surrounding the introduction and spread of connected objects in healthcare (i.e. connected digital objects), we considered it necessary to avoid developing an approach focused solely on this innovation. Instead, we chose to recontextualize it by situating connected objects within a broader dynamic and a longer timeframe, not only within the healthcare sector, but more broadly within the field of health. To this end, we adopt a communicational perspective that accounts for a recurring theme in discourse: the modernization of healthcare as a promise of better health outcomes, whether through production, prevention, monitoring or support for care.
To describe the conditions for integrating this type of technology, our first step is to adopt a broader lens and revisit the 1980s to understand how what we term "moving closer together through detachment1" emerged and evolved.
Next, we examine how, during the 2010-2020 decade, connected objects - in a broader sense - became part of, extended, challenged or failed to align with this process.
Finally, we explore how connected objects reinforce this process of moving closer together through detachment - notably by introducing more sociotechnical mediations - limiting the production of sensitive data while aligning with a usage-based logic that gradually took shape during the development of remote health services.
What should be understood by "moving closer together" through "detachment"? It is the promise of remaining as close as possible to the patient while care practices and health organizations simultaneously withdraw, establishing a sociosanitary distance from bodies and individuals.
What is proposed here is, in a sense, a sociological interpretation that combines "moving closer together" and "distancing" in healthcare - highlighting the role of digital communication. It should be noted that this concept emerged from research conducted with our colleague Robert Panico and was later explored in a French follow-up publication titled "Informationalization in Healthcare or Moving Together through Detachment? Elements of an Analysis of the Economic and Organizational Management of Healthcare Distance" (Carré and Panico 2003). That study sought to describe "the terminological indeterminacy that arises from the combination of two terms that appear both contradictory and simultaneous: beyond the spatial metaphor, it is a matter of interrogating this semantic ambiguity." (Carré and Panico 2003, p. 102).
There were two objectives to this research. On the one hand, we deliberately posed a somewhat provocative question about detachment, taking a contrarian stance towards a reform agenda which, under successive governments, aimed to link system modernization with improved access to care and closer proximity to healthcare through the territorial reorganization of health services and the new coordination of healthcare providers centered around the patient. On the other hand, we sought to examine a less frequently discussed aspect of modernization - less celebrated because it is more pragmatic - namely, cost control, which is now less of a taboo, as the rationalization of actions and increased oversight of care practices have become standardized.
1.1. The shift to ambulatory care: digitalized as a structuring framework
Faced with rising public healthcare expenditures, which in France account for nearly 10% of GDP2, public authorities, among others, came to view the sector as in need of reorganization to restore order, as it was becoming ungovernable (Julien et al. 1987). At that time, public authorities began to adopt a stricter, accounting-based logic, leading to a more quantitative and enduring vision (Morel 1997), which has only grown stronger. This drive for reorganization centered around what became known as the "Bostonian" model, and the following series of objectives: hospital closures or consolidations, fewer doctors, shorter hospital stays, increased patient involvement and expanded outpatient surgery, among others.
All of this was captured in the term "shift to ambulatory care," which rested on four key pillars (Carré and Lacroix 1999): the establishment of technical networks in the healthcare sector; the creation of a computerized patient record, initially shared, then more recently integrated into an online personal health account; more collaborative care pathways involving healthcare professionals; and finally, increased patient autonomy and task externalization. These developments encouraged the entry of new actors into the healthcare field, allowing for short-term experimentation and the gradual rollout of remote services (e.g. remote monitoring, remote consultations, tele-diagnosis, etc.).
Here, the concept of remote services should be understood in a broad and generic sense, often situated at the intersection of market-based and non-market-based models (Carré 2001). These changes are thus part of a dual process: the implementation of healthcare administration and oversight3 through the establishment of sociotechnical mediations between healthcare providers and patients.
The sociosanitary crisis, as Carré and Lacroix (2001a) remind us, is politically driven. The arguments put forward are not based on a need to respond to malfunctions in the healthcare sector, but rather stem from the view that health costs (i.e. budgetary concerns) are too high and, as some claim (specialists, experts, public authorities), threaten to slow France's economic growth and competitiveness. As a result, budgets must be cut and streamlined4. The solution is imposed without public debate, and implemented through the technical networks of healthcare actors.
Four communicational strategies will be implemented, more or less chronologically:
- de-singularizing the healthcare sector to make it more ordinary, with the aim of treating it like any other sector - allowing comparisons that highlight its lower productivity;
- assigning individual responsibility to healthcare actors, using approaches that induce psychological discomfort to promote personal changes in attitude or behavior. In other words, individuals are held accountable, particularly in cases of medical nomadism or excessive medication use;
- imposing regulations, sanctions or threats to incentivize those who are reluctant to comply;
- promoting telemedicine. This final point highlights technical achievement and noble goals - such as improving healthcare quality, humanizing medicine and enhancing patient autonomy - while downplaying less acceptable, more industrial or labor-intensive goals that are harder to justify to the public and healthcare professionals.
1.2. Innovation and technology: the position given to digital ICT
The healthcare sector, and particularly hospitals, is a major driver of innovation in our societies, adopting emerging technologies across many disciplines (surgery, radiology, hematology, among others). It is worth noting that hospitals were among the first institutions to computerize their administrative systems and exchange data electronically. These technical innovations extend traditional methods of examining the human body while also improving and streamlining them to enable more accurate diagnoses, as seen in the evolution of radiography, particularly ultrasound, MRI and CT scans.
These tools have gradually become diagnostic aids (expert systems of varying complexity), but a key shift occurred at the turn of the 21st century with the rise of digital information and communication technologies (ICTs). Their introduction began to influence not only care delivery but also administrative and financial systems (healthcare economics), and even served as communication tools - through secure messaging platforms, digital portals and other interfaces - between institutions, professionals and patients.
All of this has had a significant impact on operating methods, team dynamics and modes of cooperation, progressively integrating into patient interactions. The phenomenon intensified throughout the 2010s and particularly during the Covid-19 pandemic.
Thus, digital information and communication technologies hold an important position in health modernization, since they are both the result of reform; modernization requires digitization and the use of networking by stakeholders and, in turn, they drive reform by introducing new actors and strategic logics that were, until recently, foreign to the healthcare sector.
According to public authorities at the time, the goal of these techniques, among others, was to reshape the delivery of care around the patient, ensuring the closest possible proximity (Carré and Panico 2003). This process of social digitization even extends beyond traditional care settings (clinics, hospitals) to reach medical practices where community-based medicine is provided.
The modernization deemed necessary thus encourages networked healthcare, enabling information exchange and the expansion of so-called remote services, contributing to a new vision of care access and practices, in which health becomes integrated into the so-called digital society.
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