Genetic Testing
Accounts of Autonomy, Responsibility and Blame
1st Edition
Published on 1. March 2013
224 pages
978-1-134-02628-9 (ISBN)
Description
Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals.
This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail.
This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail.
More details
Series
Edition
1. Auflage
Language
English
Place of publication
London
United Kingdom
Publishing group
Taylor & Francis Ltd
Target group
College/higher education
Product notice
Reflowable
Illustrations
2 s/w Abbildungen, 1 s/w Photographie bzw. Rasterbild, 1 s/w Zeichnung
1 Line drawings, black and white; 1 Halftones, black and white; 2 Illustrations, black and white
File size
1,60 MB
ISBN-13
978-1-134-02628-9 (9781134026289)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Other editions
Additional editions
Michael Arribas-Ayllon | Srikant Sarangi | Angus Clarke
Genetic Testing
Accounts of Autonomy, Responsibility and Blame
Book
02/2014
1st Edition
Routledge
€78.80
Shipment within 10-20 days
Michael Arribas-Ayllon | Srikant Sarangi | Angus Clarke
Genetic Testing
Accounts of Autonomy, Responsibility and Blame
Book
10/2011
1st Edition
Routledge
€230.70
Shipment within 15-20 days
Book
06/2010
Routledge
€111.42
No shipping information available
Persons
Michael Arribas-Ayllon is Lecturer in Biological and Cognitive Psychology at Cardiff University. His research interests include histories and futures of biological knowledge, the social shaping of genetic testing, the politics of personalised medicine and the discourse ethics of genetic counselling and risk communication.
Srikant Sarangi is Professor of Language and Communication and Director of the Health Communication Research Centre at Cardiff University. His research interests are in discourse analysis and applied linguistics, language and identity in public life, and institutional/professional discourse studies. He is author/editor of 12 books, guest-editor of five journal special issues and has published over 200 journal articles and book chapters.
Angus Clarke is Professor in Clinical Genetics in Cardiff University. He has interests in Rett syndrome and ectodermal dysplasia, as well as genetic screening, the genetic counselling process and the social and ethical issues raised by advances in human genetics. He also teaches and works as a clinician. He represents the Chief Medical Officer for Wales on the Human Genetics Commission. He has co-authored and edited six books, including Genetics, Society and Clinical Practice (jointly with Professor Peter Harper).
Srikant Sarangi is Professor of Language and Communication and Director of the Health Communication Research Centre at Cardiff University. His research interests are in discourse analysis and applied linguistics, language and identity in public life, and institutional/professional discourse studies. He is author/editor of 12 books, guest-editor of five journal special issues and has published over 200 journal articles and book chapters.
Angus Clarke is Professor in Clinical Genetics in Cardiff University. He has interests in Rett syndrome and ectodermal dysplasia, as well as genetic screening, the genetic counselling process and the social and ethical issues raised by advances in human genetics. He also teaches and works as a clinician. He represents the Chief Medical Officer for Wales on the Human Genetics Commission. He has co-authored and edited six books, including Genetics, Society and Clinical Practice (jointly with Professor Peter Harper).
Content
1. Introduction 2. Genetic Testing: Technology in Context 3. Neo-liberalism and the New Genetics 4. Rhetorical Discourse Analysis 5. Personal Genomics and the Media 6. Family Accounts of Genetic Responsibility 7. Accounts of Genetic Testing in the Clinic 8. Professional Accounts of Ethical Challenges in Prenatal Clinic 9. Conclusion
