Dwarfism
Medical and Psychosocial Aspects of Profound Short Stature
Published on 26. September 2005
368 pages
978-1-4214-0366-3 (ISBN)
Description
This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century-particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases.
Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care-transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families.
The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals-physicians, nurses, genetic counselors, social workers, psychologists, and medical students.
Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care-transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families.
The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals-physicians, nurses, genetic counselors, social workers, psychologists, and medical students.
More details
Language
English
Place of publication
Baltimore
United States
Target group
Professional and scholarly
Illustrations
48 s/w Photographien bzw. Rasterbilder, 4 s/w Zeichnungen
4 Line drawings, black and white; 48 Halftones, black and white
File size
5,04 MB
ISBN-13
978-1-4214-0366-3 (9781421403663)
DOI
10.56021/9780801881213
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Other editions
Additional editions
Book
09/2005
Johns Hopkins University Press
€41.00
Article not available for order
Book
09/2005
Johns Hopkins University Press
€93.67
Article exhausted; check different version
Persons
Betty M. Adelson spent most of her career as a psychologist in private practice. She was formerly on the counseling staffs of Queens College and New York University's School of Education. She is the author of a cultural history, The Lives of Dwarfs: Their Journey from Public Curiosity toward Social Liberation.
Content
Foreword, by Judith G. Hall, O.C., M.D.
Preface
Introduction
1. Medical Aspects
2. Psychosocial Aspects
3. The Birth of a Child: Parent Issues and Outreach
4. Organizations: From Self-Help to Advocacy
5. Lives Today
Appendixes
1. Dwarfism: Conditions and Descriptions
2. Resources: Medical and Support Groups
Notes
Index
Preface
Introduction
1. Medical Aspects
2. Psychosocial Aspects
3. The Birth of a Child: Parent Issues and Outreach
4. Organizations: From Self-Help to Advocacy
5. Lives Today
Appendixes
1. Dwarfism: Conditions and Descriptions
2. Resources: Medical and Support Groups
Notes
Index
"This book is one of the best, most thorough overviews published on dwarfism-related topics. The text is well written, but from the heart, in a way that makes it particularly useful for those who appreciate having scholarly information presented within a meaningful personal and social context. This is a volume that everyone dealing with short stature will want to read and then keep for future reference."-From the foreword by Judith G. Hall, O.C., M.D.
