Genetics, Disability and the Law
Towards an EU Legal Framework
Published on 21. September 2017
Book
Hardback
330 pages
978-1-107-12757-9 (ISBN)
Description
While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases. However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights. An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.
More details
Series
Language
English
Place of publication
Cambridge
United Kingdom
Target group
Professional and scholarly
Product notice
sewn/stitched
Cloth over boards
Dimensions
Height: 240 mm
Width: 166 mm
Thickness: 20 mm
Weight
594 gr
ISBN-13
978-1-107-12757-9 (9781107127579)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Other editions
Additional editions
Book
12/2018
Cambridge University Press
€44.00
Shipment within 15-20 days
E-Book
09/2017
Cambridge University Press
€23.49
Available for download
E-Book
09/2017
Cambridge University Press
€27.99
Available for download
Person
Aisling de Paor is a lecturer in Law at Dublin City University. She is a qualified solicitor and an honorary research fellow with the Burton Blatt Institute at Syracuse University, New York. She was previously a visiting scholar here in 2012 and 2014 and a part-time lecturer in Law at National University of Ireland, Galway (2009-2014). She has published in numerous journal articles in the fields of genetics law and policy, medical law and disability law, including the European Journal of Health Law. She is also co-editor of Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response (2014).
Content
1. Introduction; Part I. New Science and Technology and the Ethical and Legal Issues Arising: 2. Background: advancing genetic science; 3. Ethical implications, legal issues and public policy concerns of advancing genetic technology; 4. A disability framework - the interface of the social model of disability with the evolution of genetic science; Part II. The Imperative for Regulation and the Choice of Regulator Theory and Frameworks: 5. Mode of regulation and choice of regulatory frameworks in legal theory; 6. Framings from international human rights law; 7. Evolving comparative law benchmarks; Part III. The European Perspective: 8. Human rights norms in the Council of Europe and the regulation of genetic information; 9. The European Union and protection of genetic information; Part IV. Building the Case for a European Union Regulatory Framework: 10. National level approaches - a patchwork of protections; 11. A case for European Union level action; 12. Conclusion - where next for the EU?