The Governance of Genetic Information
Who Decides?
Published on 5. December 2013
Book
Paperback/Softback
248 pages
978-1-107-62542-6 (ISBN)
Description
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
More details
Series
Language
English
Place of publication
Cambridge
United Kingdom
Target group
Professional and scholarly
Product notice
Paperback (trade)
Dimensions
Height: 229 mm
Width: 152 mm
Thickness: 14 mm
Weight
365 gr
ISBN-13
978-1-107-62542-6 (9781107625426)
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Schweitzer Classification
Other editions
Additional editions
E-Book
11/2009
1st Edition
Cambridge University Press
€29.49
Available for download
Book
09/2009
Cambridge University Press
€84.80
Shipment within 15-20 days
Persons
Dr Heather Widdows is a Senior Lecturer in the Department of Philosophy at the University of Birmingham, where she teaches moral philosophy and bioethics. Dr Caroline Mullen is a research officer at the Centre for European Law and Legal Studies, School of Law, University of Leeds.
Content
Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; 2. Me, myself, I: against narcissism in the governance of genetic information Soren Holm; 3. Decisions, consent and expectations of the individual Caroline Mullen; Section II. Ethical Frameworks of Governance: 4. Constructing communal models of governance: collectives of individuals or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and stewardship: beyond consent Roger Brownsword; 6. Who decides what? Relational ethics, genetics and well-being Sarah Wilson; Section III. Redesigning Governance: 7. Involving publics in biobank governance: moving beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8. Genetic information and public opinion Andrew Edgar; 9. Harmonisation and standardisation in ethics and governance: Conceptual and practical challenges Ruth Chadwick and Heather Strange.