Social Policy First Hand

Foreword ~ Baroness Ruth Lister


Introduction ~ Peter Beresford and Sarah Carr


Part I: Service users and social policy: an introduction


Challenging Injustice: the importance of collective ownership of social policy ~ Danny Dorling


Participation and solidarity in a changing welfare state ~ Peter Taylor-Gooby


Social policy in developing countries: A post-colonial critique and participatory inquiry ~ Sweta Rajan-Rankin


Advancing sustainability: developing participatory social policy in the context of environmental disasters ~ Margaret Alston


Social policy and disability ~ Colin Cameron


A case study of children's participation in health policy and practice ~ Louca-Mai Brady, Felicity Hathway and Emily Roberts


Who owns co-production? ~ Sarah Carr


Part II: Critiquing and reconceiving Beveridge's 'five giant evils': Key areas of British post-war social policy from a lived experience perspective


Rethinking disabled people's rights to work and contribute ~ Jane Young


Talking policy as a patient ~ Anya de Iongh


'We don't deal with people we deal with bricks and mortar': a lived experience perspective on UK health and housing policy ~ Alison Cameron


Education (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective ~ Tara Flood and Navin Kikabhai


'For work, we came here to find work': migrant Roma employment and the labour of language ~ Colin Clark


Part III: The contribution of service user knowledges


Disability policy and lived experience: reflections from regional Australia ~ Kathy Boxall, Adam Johnson, Lawrence Mitting, Suzanne Simpson,


Stefan Zwickl, Judith Zwickl, Shae Kermit, Luke and Caroline


Renewing epistemologies: service user knowledge ~ Diana Rose


Pornography, feminist epistemology and changing public policy ~ Ruth Beresford


Making social policy internationally: a participatory research perspective ~ Nicola Yeates and Ana B. Amaya


Part IV: An inclusive life course and developmental approach to social policy


Disabled children's lives: an inclusive life course and developmental approach to social policy ~ Mary Wickenden


Troubled Youth and Troubling Social Policy: Mental Health From a Mad Studies Perspective ~ Lucy Costa


Disability: an inclusive life course and developmental approach to social policy ~ Emmeline Burdett


Independent living from a Black Disabled Woman's perspective ~ Michelle Daley


Food poverty and the policy context in Ireland ~ Deirdre O'Connor


Implementing race equality policies in British health and social care: a perspective from experience ~ Hari Sewell


Participatory approaches to social policy in relation to ageing ~ Sarah Lonbay


Death, dying and digital stories ~ Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Peter James Simpson, Tessa Morgan, Marianne Grbin, Matua Rawiri Wharemate and Whaea Whio Hansen


Part V: Transforming social policy


People acting collectively can be powerful ~ Jennie Fleming


Their participation and ours: competing visions of empowerment ~ Iain Ferguson


A participatory approach to professional practice ~ Suzy Croft


Dreams of justice ~ Tina Minkowitz


Sustainable-participatory social policy ~ Marilyn Palmer


Participatory social policy in a large EU research project ~ Joe Greener and Michael Lavalette, with Rose Devereaux and members


of SUGAH


Part VI: Campaigning and change


Section One: Approaches to activism


'What Is strong, now what is wrong' An interview with Clenton Farquharson MBE


Participatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care ~ Barbara Fawcett


Public duty, whistleblowing and scandal: influences on public policy ~ Kay Sheldon


Visual: Making the case for single sex mental health wards ~ Kay Sheldon


'Informed gender practice in acute mental health': when policy makes sense ~ Nicky Lambert


#JusticeforLB: in search of truth, accountability and justice ~ George Julian and Sara Ryan


Section Two: The role of online platforms and social media


Guerilla policy: new platforms for making policy from below ~ Michael Harris


A Magna Carta for learning disabled people ~ Kaliya Franklin and Gary Bourlet


Pat's Petition: The emerging role of social media and the internet ~ Pat Onions and others


Part VII: Breaking down barriers


Section One: Inclusion and difference in the formulation and operation of social policy


"LGBT History Month is a thing!" The story of an equal rights campaign ~ Sue Sanders


Section Two: user-led approaches to social policy


Transforming professional training and education - a gap mending approach: The PowerUs European partnership ~ Helen Casey


Grassroots tackling policy: the making of the 'Spartacus Report' ~ Sam Barnett-Cormack


Involvement for influence: developing the 4Pi Involvement Standards ~ Sarah Yiannoullou and Alison Faulkner


Part VIII: Participatory research and evaluation


From expert to service user: challenging how lived experience is demeaned ~ Michele Moore


Participatory methodologies involving marginalised perspectives ~ Charlotte Williams


Developing the evidence to challenge 'welfare reform': the road to 'Cash Not Care' ~ Mo Stewart


Service user-controlled research for evidence-based policy making ~ Alison Faulkner


Participatory citizenship, gender and human trafficking in Nepal ~ Diane Richardson, Nina Laurie, Meena Poudel, Shakti Samuha and Janet Townsend


Experiential knowledge in mental health policy and legislation: can we ever change the agenda? ~ Jasna Russo


Conclusion ~ Peter Beresford and Sarah Carr