Navigating Life with Parkinson's Disease
1st Edition
Published on 6. December 2012
Book
Paperback/Softback
320 pages
978-0-19-989778-0 (ISBN)
Description
The American Academy of Neurology's (AAN) Neurology Now Books series answer the questions and concerns of patients and caregivers with specific neurologic diseases who are navigating a host of issues related to living-often long-term-with a neurologic illness.
Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's-patients, family members, friends, and caregivers. Containing the most up-to-date information on the disease, one of the most common nervous system diseases, it also discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their
loved ones, Navigating Life with Parkinson's Disease answers many questions and clarifies misunderstandings regarding the disease.
While addressing all the relevant aspects of the disease, the authors do so in a manner that is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are called out for easy visibility. The authors have also included true patient stories that will both inspire and instruct. The authors have also taken care to address several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's
life with Parkinson's; what role the care partner can play, and what is the best way to help a loved one without facing burnout.
Promoting the patient-centered, multi- and multidisciplinary model of chronic disease management, Navigating Life with Parkinson's Disease empowers patients and their families with the necessary information to take charge of their health care.
Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's-patients, family members, friends, and caregivers. Containing the most up-to-date information on the disease, one of the most common nervous system diseases, it also discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their
loved ones, Navigating Life with Parkinson's Disease answers many questions and clarifies misunderstandings regarding the disease.
While addressing all the relevant aspects of the disease, the authors do so in a manner that is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are called out for easy visibility. The authors have also included true patient stories that will both inspire and instruct. The authors have also taken care to address several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's
life with Parkinson's; what role the care partner can play, and what is the best way to help a loved one without facing burnout.
Promoting the patient-centered, multi- and multidisciplinary model of chronic disease management, Navigating Life with Parkinson's Disease empowers patients and their families with the necessary information to take charge of their health care.
Reviews / Votes
The authors provide useful, honest, and clearly-stated advice. . . Sure, there are some rough seas ahead, but Navigating Life with Parkinson Disease will help us to sail them with skill, confidence, grace, and courage. * Peter G. Beidler, Northwest Parkinsons Foundation *More details
Series
Language
English
Place of publication
New York
United States
Target group
Patients and caregivers affected by Parkinson's disease. Neurologists and other allied health professionals.
Illustrations
20 illustrations
Dimensions
Height: 209 mm
Width: 141 mm
Thickness: 16 mm
Weight
362 gr
ISBN-13
978-0-19-989778-0 (9780199897780)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Other editions
Additional editions
Sotirios Parashos | Rose Wichmann
Navigating Life with Parkinson Disease
E-Book
11/2012
1st Edition
OUP eBook
€16.49
Available for download
Rose Wichmann
Navigating Life with Parkinson Disease
E-Book
10/2012
1st Edition
Oxford University Press, USA
€19.39
Available for download
Persons
Sotirios Parashos, MD, Clinical Research Lead, Struthers Parkinson's Center, Park Nicollet Methodist Hospital, Golden Valley, MN, and Clinical Associate Professor at the University of Minnesota, Twin Cities.
Rosemary Wichman, Manager and Lead Physical Therapist, Struthers Parkinson's Center, Park Nicollet Health Services, Golden Valley, MN.
Todd Melby, New Media and Project Coordinator for Ampers, a collection of 12 independent radio stations in Minnesota; Senior producer at 2 below zero, independent producers of public media, and Freelance reporter, focusing on public radio. He has been featured on The World, NPR's Day to Day, NPR's Only a Game, NPR's Justice Talking, Marketplace, Savvy Traveler and The Environment Report.
Rosemary Wichman, Manager and Lead Physical Therapist, Struthers Parkinson's Center, Park Nicollet Health Services, Golden Valley, MN.
Todd Melby, New Media and Project Coordinator for Ampers, a collection of 12 independent radio stations in Minnesota; Senior producer at 2 below zero, independent producers of public media, and Freelance reporter, focusing on public radio. He has been featured on The World, NPR's Day to Day, NPR's Only a Game, NPR's Justice Talking, Marketplace, Savvy Traveler and The Environment Report.
Author
Clinical Research Lead, Struthers Parkinson's Center, Park Nicollet Methodist HospitalClinical Research Lead, Struthers Parkinson's Center, Park Nicollet Methodist Hospital, Clinical Associate Professor at the University of Minnesota, Twin Cities.
Manager and Lead Physical TherapistManager and Lead Physical Therapist, Struthers Parkinson's Center, Park Nicollet Health Services
New Media and Project Coordinator for Ampers; Senior producer at 2 below zero; independent producers of public media, and Freelance reporter, focusing on public radio
Content
INTRODUCTION ; CHAPTER 1: WHAT IS IT? WHY ME? ; What is it? ; What Causes Parkinson Disease? ; What Are the Stages of the Disease? ; Who Gets the Disease? Why Me? ; Is There Help? ; The Outlook for People with Parkinson Disease ; CHAPTER 2: THE MOTOR SYMPTOMS ; Tremor ; Bradykinesia ; Rigidity ; Loss of Balance, Freezing, and Falling ; Other Motor Symptoms ; Motor Symptoms That May Occur as a Complication of Treatment ; CHAPTER 3: THE NON-MOTOR SYMPTOMS ; Sensory Symptoms ; Cognitive Symptoms ; CHAPTER 4: DIAGNOSIS ; CHAPTER 5: HOW WILL MY LIFE CHANGE? ; Reacting to the Diagnosis ; Seeking More Information ; Next Step ; CHAPTER 6: DISEASE MANAGEMENT: GENERAL PRINCIPLES, MEDICATIONS, AND SURGERY ; What Are Our Weapons in Treating Parkinson Disease? ; What if I Don't Want to Start Medications Right Away? ; Brain Surgery for Parkinson Disease ; CHAPTER 7: DISEASE MANAGEMENT: REHABILITATION THERAPY, ASSISTIVE DEVICES, AND ADAPTIVE EQUIPMENT ; Physical Therapy ; Occupational Therapy ; Speech Therapy ; Assistive Devices and Adaptive Equipment ; CHAPTER 8: DISEASE MANAGEMENT: SPECIFIC SYMPTOMS ; Managing Tremor, Bradykinesia, and Rigidity ; Managing Balance Challenges and Freezing of Gait ; Managing Weakness and Fatigue ; Managing Dyskinesia, Dystonia, and Wearing Off ; Managing Speech and Communication Problems ; Managing Excessive Salivation, Drooling, and Thick Secretions ; Managing Swallowing Problems ; Managing Vision Problems ; Managing Difficulties with Bladder Control ; Dealing With Loss of Mobility in the Advanced Stages ; Dealing With Mild Cognitive Symptoms ; Managing Confusion, Hallucinations, and Dementia ; Dealing With Apathy, Depression, Impulsivity, and Anxiety ; Managing Sleep Changes in Parkinson Disease ; Managing Orthostatic Hypotension ; Weight Loss ; Keeping Skin in Shape ; Hospitalization ; Elective Surgery ; Medications to Avoid ; CHAPTER 9: LIFESTYLE CHANGES AND DISEASE MANAGEMENT ; The Importance of Exercise ; Leisure Activities ; Stress Management ; Driving ; Spirituality ; Travel ; Using Complementary Therapies ; The Power of Music and Dance ; Getting Involved in the Parkinson Community ; CHAPTER 10: RESEARCH ; Why Should I Consider Participating in Research? ; What Kinds of Research Studies May Be Open to a Person With Parkinson Disease? ; The "Informed Consent" ; Where Can I Learn More? ; CHAPTER 11: LEGAL AND FINANCIAL ISSUES ; Advance Directives ; Living Wills ; HIPAA-What Information Do I Have Access to and How to Make the Most of It ; Maintaining Tracking Information through Electronic Medical Records ; ADA Issues ; Financial Planning ; CHAPTER 12: THE CAREPARTNER ; Coping With Caregiver Stress and Fatigue ; Planning for the Future ; CHAPTER 13: COMMUNITY INVOLVEMENT, ADVOCACY, AND RESOURCES ; A Passion for Advocacy ; Find Out More ; GLOSSARY