
Justice and the Human Genome Project
University of California Press
1st Edition
Published on 22. July 1994
Book
Hardback
178 pages
978-0-520-08363-9 (ISBN)
Description
The Human Genome Project is an expensive, ambitious and controversial attempt to locate and map every one of the approximately 100,000 genes in the human body. If it works, and we are able, for instance, to identify markers for genetic disease long before they develop, who will have the right to obtain such information? What will be the consequences for health care, health insurance, employability and research priorities? And, more broadly, how will attitudes toward human differences be affected, morally and socially, by the setting of a genetic "standard"? The compatibility of individual rights and genetic fairness is challenged by the technological possibilities of the future, making it difficult to create an agenda for a "just genetics." Beginning with an account of the utopian dreams and authoritarian tendencies of historical eugenics movements, this book's nine essays probe the potential social uses and abuses of detailed genetic information.
More details
Edition
First Edition
Language
English
Place of publication
Berkerley
United States
Target group
College/higher education
Professional and scholarly
Product notice
Cloth over boards
Weight
454 gr
ISBN-13
978-0-520-08363-9 (9780520083639)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Persons
Timothy F. Murphy is Assistant Professor of Philosophy in the Biomedical Sciences and Marc A. Lappe is Professor of Health Policy and Ethics at the University of Illinois College of Medicine. Murphy is co-editor of Writing AIDS: Gay Literature, Language and Analysis (1992), and Lappe is the author of Chemical Deception (1991).
Content
The Genome Project and the Meaning of Difference, Timothy F. Murphy. Eugenics and the Human Genome Project: Is the Past Prologue?, Daniel J. Kevles. Handle with Care: Race, Class, and Genetics, Arthur L. Caplan. Public Choices and Private Choices - Legal Regulation of Genetic Testing, Lori B. Andrews. Rules for Gene Banks: Protecting Privacy in the Genetics Age, George J. Annas. Use of Genetic Information by Private Insurers, Robert J. Pokorski. The Genome Project, Individual Differences and Just Health Care, Norman Daniels. Just Genetics: A Problem Agenda, Leonard M. Fleck. Justice and the Limitations of Genetic Knowledge, Marc A. Lappe.