De-Sequencing
Identity Work with Genes
Published on 8. December 2020
Book
Hardback
XVII, 181 pages
978-981-15-7727-7 (ISBN)
Description
Are you your genes?
De-Sequencing: Identity Work with Genes
explores this perplexing question, showing how different forms of knowledge must be contextualized to become meaningful. It is generally assumed that the genomic sequence adds up to the identity-forming material life is made of. Yet identity cannot itself adopt the form of a sequence. As the authors in this volume show, the genome must be 'de-sequenced' by human language to render it interpretable and meaningful in a social context. The book unpacks this type of 'sequence-speech' in engaging detail, adopting a personal, social, cultural, and bio-political approach to examine the transformation of human identity and reflexivity in the era of genetic citizenship.
More details
Series
Edition
2020 ed.
Language
English
Place of publication
Singapore
Singapore
Target group
Professional and scholarly
Illustrations
1 s/w Abbildung, 6 farbige Abbildungen
XVII, 181 p. 7 illus., 6 illus. in color.
Dimensions
Height: 216 mm
Width: 153 mm
Thickness: 17 mm
Weight
398 gr
ISBN-13
978-981-15-7727-7 (9789811577277)
DOI
10.1007/978-981-15-7728-4
Schweitzer Classification
Other editions
Additional editions
Book
12/2021
Springer
€106.99
Shipment within 3-4 weeks
E-Book
12/2020
1st Edition
Palgrave Macmillan
€96.29
Available for download
Persons
Dr. Dana Mahr
is senior researcher and lecturer at the University of Geneva, Switzerland. Her research centers on how we make sense out of science, technology, and medicine from a comparative and interdisciplinary perspective.
Martina von Arx, M.A. is a PhD candidate at the University of Geneva, Switzerland. She explores how health professionals and patients experience digital technologies as part of the current developments of personalized health in Switzerland.
Martina von Arx, M.A. is a PhD candidate at the University of Geneva, Switzerland. She explores how health professionals and patients experience digital technologies as part of the current developments of personalized health in Switzerland.
Content
1. Introduction.- Part I Science and Medicine.- 2. Personalised Medicine: Problems of translation into the human domain.- 3. Contemporary Future Parents: From tentative pregnancy and moral pioneers to educated moral gamblers.- Part II Philosophy of Biology.- 4. Developmental narratives.- 5. Epigenetics, responsiveness and embodiment.- 6. Space and time of developmental narratives.- Part III Societal Contexts.- 7. Data mining in systems medicine and the project of solidarity - the interface of genomics and society revisited.- 8. Experimenting with solidarity in biomedicine: from practice to prin-ciple?.- 9. The moral making of data rich personalised medicine.- Part IV Families.- 10. An ordering of letters: my own personal genome.- 11. Illness in the world of the genome.- 12. How personal is the genome? The shadow of genetic predictions.- Part V Individual Experiences.- 13. Lived genome phenomenology. Exploring the genetics of chronic inflammatory bowel diseases.- 14. Existential storytelling in a genomic world.