The Oxford Handbook of Down Syndrome and Development
Published on 21. July 2023
Book
Hardback
680 pages
978-0-19-064544-1 (ISBN)
Description
The Oxford Handbook of Down Syndrome and Development comprises cutting-edge and provocative integrative reviews of essential theory and research about persons with Down syndrome at various stages of the lifespan. The volume opens with a brief section on historic and contemporary scientific approaches to understanding the development of persons with Down syndrome with subsequent sections on social development and family relations, cognition and neuropsychology, and comorbid conditions.
Together these chapters provide extensive background that leads to a comprehensive understanding of the development and well-being of persons with Down syndrome across many different aspects of everyday living. The final section contains innovative and forward-looking chapters on interventions and directions for future research. The contributors to all these chapters are leading scholars in the study of persons with Down syndrome and other neurodevelopmental conditions. However, the final word of the volume is left to those with lived experience -persons with Down syndrome and their family members who share and reflect on their life stories. This handbook is essential reading for all those interested in the development of persons with Down syndrome.
Together these chapters provide extensive background that leads to a comprehensive understanding of the development and well-being of persons with Down syndrome across many different aspects of everyday living. The final section contains innovative and forward-looking chapters on interventions and directions for future research. The contributors to all these chapters are leading scholars in the study of persons with Down syndrome and other neurodevelopmental conditions. However, the final word of the volume is left to those with lived experience -persons with Down syndrome and their family members who share and reflect on their life stories. This handbook is essential reading for all those interested in the development of persons with Down syndrome.
More details
Series
Language
English
Place of publication
New York
United States
Target group
Professional and scholarly
Product notice
sewn/stitched
Cloth over boards
Dimensions
Height: 256 mm
Width: 188 mm
Thickness: 53 mm
Weight
1324 gr
ISBN-13
978-0-19-064544-1 (9780190645441)
Copyright in bibliographic data and cover images is held by Nielsen Book Services Limited or by the publishers or by their respective licensors: all rights reserved.
Schweitzer Classification
Other editions
Additional editions
Jacob A. Burack | Jamie Edgin | Leonard Abbeduto
The Oxford Handbook of Down Syndrome and Development
E-Book
06/2023
OUP eBook
€118.99
Available for download
Jacob A. Burack | Jamie Edgin | Leonard Abbeduto
The Oxford Handbook of Down Syndrome and Development
E-Book
06/2023
OUP eBook
€118.99
Available for download
Persons
Jacob A. Burack is Professor of School and Applied Child Psychology and Human Development in the Department of Educational and Counselling Psychology at McGill University. He is the founder and director of the McGill Youth Study Team (MYST), the scientific director of the Summit Center for Education, Research, and Training (SCERT), and was a founding co-investigator of the Autism Research Training (ART) and National Aboriginal Mental Health Research (NAMHR) networks that were funded by the Canadian Institutes for Health Research. Together with his students, Dr. Burack's work is guided by the MYST motto of "excellence in the study and education of all children."
Jamie Edgin is Associate Professor and Director of the Cognition and Neural Systems Program in the Department of Psychology at the University of Arizona. Her area of expertise is sleep and neuropsychological development in typical and atypical development, including over 20 years of work with individuals with Down syndrome. She has
served on the science advisory board of NDSS since 2016. Dr. Edgin currently directs the University of Arizona Public Policy Fellowship in the Sonoran UCEDD, focused on policy development and advocacy for persons with developmental disabilities.
Leonard Abbeduto is Director of the MIND Institute, the Tsakopoulos-Vismara Endowed Chair, and Professor of Psychiatry and Behavioral Sciences at the University of California, Davis. His current research is focused on understanding variation in language outcomes in various conditions associated with intellectual disability, the measurement of treatment effects in clinical trials, and the use of distance technology to deliver behavioral treatment. He is the Director of the NICHD-funded MIND Institute Intellectual and Developmental Disabilities Research Center. He also co-directs the UC Davis Redwood SEED Scholars program, which is a 4-year, residential, inclusive college program for individuals with intellectual disabilities.
Jamie Edgin is Associate Professor and Director of the Cognition and Neural Systems Program in the Department of Psychology at the University of Arizona. Her area of expertise is sleep and neuropsychological development in typical and atypical development, including over 20 years of work with individuals with Down syndrome. She has
served on the science advisory board of NDSS since 2016. Dr. Edgin currently directs the University of Arizona Public Policy Fellowship in the Sonoran UCEDD, focused on policy development and advocacy for persons with developmental disabilities.
Leonard Abbeduto is Director of the MIND Institute, the Tsakopoulos-Vismara Endowed Chair, and Professor of Psychiatry and Behavioral Sciences at the University of California, Davis. His current research is focused on understanding variation in language outcomes in various conditions associated with intellectual disability, the measurement of treatment effects in clinical trials, and the use of distance technology to deliver behavioral treatment. He is the Director of the NICHD-funded MIND Institute Intellectual and Developmental Disabilities Research Center. He also co-directs the UC Davis Redwood SEED Scholars program, which is a 4-year, residential, inclusive college program for individuals with intellectual disabilities.
Editor
Professor, Department of Education and Counselling PsychologyProfessor, Department of Education and Counselling Psychology, McGill University
Associate Professor, Department of PsychologyAssociate Professor, Department of Psychology, University of Arizona
Professor of Psyciatry and Behavioral SciencesProfessor of Psyciatry and Behavioral Sciences, University of California, Davis
Content
Section 1: Historic and Contemporary Scientific Approaches
1. History: Science, Policy, and Families
Roy Brown, Margaret R. Kyrkou, Karen Watchman, and Robert M. Hodapp
2. Developmental Approaches
Jacob A. Burack, Jessica Lai, Jillian Stewart, and Oriane Landry
3. Social-emotional Development
Amanda Dimachkie and Connie Kasari
4. Animal Models
Ana Moyer and Roger H. Reeves
Section 2: Social Development and Family Relations
5. Mother-Child Dyads
Penny Hauser-Cram, Ashley Woodman, and Linda Gilmore
6. Parental Socialization & the Down Syndrome Advantage
Robert Hodapp and Ellen Casale
7. The Roles of Siblings
Monica Cuskelly
8. Fears, Phobias, and Rituals
David W. Evans and Mirko Uljaravic
9. Family Care of Adults
Robert Hodapp, Kelli Sanderson, and Maria Mello
Section 3: Cognition and Neuropsychology
10.Infant Development
Hana D'Souza and Dean D'Souza
11. Lifespan Brain Development
Nancy Raitano Lee, Manisha Udhnani, and Taralee Hamner
12. Perceptual Signatures
Jacalyn Guy, Christina Marcone, and Armando Bertone
13. Attention
Ellie Kaplan, Elizabeth P. McKernan, Justin B. Kopec, Erin Matsuba, and Natalie Russo
14. Working Memory
Liz Smith and Chris Jarrold
15. Executive Function
Deborah Fidler, Lisa A. Daunhauer, Elizabeth Will, and Emily Schworer
16. Language Development
Leonard Abbeduto, Natalie Arias-Trejo, Angela John Thurman, Jessica Ramos-Sanchez, and Laura Del Hoyo Soriano
17. Motor Skills
Shannon Ringenbach, Nathaniel Arnold, Kahyun Nam, Simon D. Holzapfel, Chih-Chia Chen, Corina Lopez, and Monica Szeto
Section 4: Comorbid Conditions
18. Brain Aging and Alzheimer's Disease
Alex Helman, Kathryn L. Van Pelt, Frederick A. Schmitt, and Elizabeth Head
19. Autism Spectrum Disorder
Cory Shulman
20. Sleep Disorders
Katharine Hughes, Payal Khosla, Lauren Pisani, Goffredina Spano, and Jamie O. Edgin
Section 5: Interventions & Future Directions
21. Language
Steven Warren, Shelley L. Bredin-Oja, Laura J. Hahn, and Nancy Brady
22. Dementia
Carla Startin, Shahid Zaman, and Andre Strydom
23. Animal Models and Development
Nadine M. Aziz and Tarik Haydar
24. Future Directions
Leonard Abbeduto, Jamie O. Edgin, and Jacob A. Burack
Epilogue: The Voices of Persons with Down Syndrome and their Families
Jacob A. Burack and Emily Stubbert
1. History: Science, Policy, and Families
Roy Brown, Margaret R. Kyrkou, Karen Watchman, and Robert M. Hodapp
2. Developmental Approaches
Jacob A. Burack, Jessica Lai, Jillian Stewart, and Oriane Landry
3. Social-emotional Development
Amanda Dimachkie and Connie Kasari
4. Animal Models
Ana Moyer and Roger H. Reeves
Section 2: Social Development and Family Relations
5. Mother-Child Dyads
Penny Hauser-Cram, Ashley Woodman, and Linda Gilmore
6. Parental Socialization & the Down Syndrome Advantage
Robert Hodapp and Ellen Casale
7. The Roles of Siblings
Monica Cuskelly
8. Fears, Phobias, and Rituals
David W. Evans and Mirko Uljaravic
9. Family Care of Adults
Robert Hodapp, Kelli Sanderson, and Maria Mello
Section 3: Cognition and Neuropsychology
10.Infant Development
Hana D'Souza and Dean D'Souza
11. Lifespan Brain Development
Nancy Raitano Lee, Manisha Udhnani, and Taralee Hamner
12. Perceptual Signatures
Jacalyn Guy, Christina Marcone, and Armando Bertone
13. Attention
Ellie Kaplan, Elizabeth P. McKernan, Justin B. Kopec, Erin Matsuba, and Natalie Russo
14. Working Memory
Liz Smith and Chris Jarrold
15. Executive Function
Deborah Fidler, Lisa A. Daunhauer, Elizabeth Will, and Emily Schworer
16. Language Development
Leonard Abbeduto, Natalie Arias-Trejo, Angela John Thurman, Jessica Ramos-Sanchez, and Laura Del Hoyo Soriano
17. Motor Skills
Shannon Ringenbach, Nathaniel Arnold, Kahyun Nam, Simon D. Holzapfel, Chih-Chia Chen, Corina Lopez, and Monica Szeto
Section 4: Comorbid Conditions
18. Brain Aging and Alzheimer's Disease
Alex Helman, Kathryn L. Van Pelt, Frederick A. Schmitt, and Elizabeth Head
19. Autism Spectrum Disorder
Cory Shulman
20. Sleep Disorders
Katharine Hughes, Payal Khosla, Lauren Pisani, Goffredina Spano, and Jamie O. Edgin
Section 5: Interventions & Future Directions
21. Language
Steven Warren, Shelley L. Bredin-Oja, Laura J. Hahn, and Nancy Brady
22. Dementia
Carla Startin, Shahid Zaman, and Andre Strydom
23. Animal Models and Development
Nadine M. Aziz and Tarik Haydar
24. Future Directions
Leonard Abbeduto, Jamie O. Edgin, and Jacob A. Burack
Epilogue: The Voices of Persons with Down Syndrome and their Families
Jacob A. Burack and Emily Stubbert