Congenital Heart Disease and Neurodevelopment

Understanding and Improving Outcomes
 
 
Academic Press
  • 1. Auflage
  • |
  • erschienen am 3. Mai 2016
  • |
  • 214 Seiten
 
E-Book | ePUB mit Adobe DRM | Systemvoraussetzungen
E-Book | PDF mit Adobe DRM | Systemvoraussetzungen
978-0-12-801792-0 (ISBN)
 

Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes brings together the work of leading researchers from the U.K., Europe, and the U.S. to provide a comprehensive examination of the causes, risks, and neurodevelopmental and psychological outcomes in children with congenital heart disease. The book includes longitudinal studies which have tracked outcomes from birth through late childhood and explores the emergent phenotype and etiologies, risk, and protective factors that strengthen proposed models.

Medical and surgical advances have meant that greater numbers of children with even the most severe congenital heart disease (CHD) now survive well into adulthood. Studies over the past 20 years have suggested certain neurodevelopmental and psychological features are common, with clinical interventions being internationally articulated. The U.K. Belfast Center has developed and evaluated unique early intervention programs to circumvent the common problems discerned and promote optimal adjustment and outcomes. The first edition of Neurodevelopmental and Psychological Phenotypes in Children with Congenital Heart Disease describes these programs in detail and outlines promising results obtained by researchers worldwide. Such interventions, together with the U.S. consensus statement (Circulation, 2012) on neurodevelopmental screening, hold great promise for clinical interventions.


  • Features input from leading research experts in the field
  • Describes cutting-edge research on longitudinal studies that link neurodevelopmental phenotypes with cutting edge neuroimaging studies
  • Discusses the first series of early intervention studies developed in Belfast targeted at key developmental transitions-birth and diagnosis, early childhood, and adolescence
  • Includes clinical implications and action points in each section
  • Features generalizable potential of interventions across other pediatric populations
  • Englisch
  • San Diego
  • |
  • USA
Elsevier Science
  • 2,64 MB
978-0-12-801792-0 (9780128017920)
0128017929 (0128017929)
weitere Ausgaben werden ermittelt
  • Front Cover
  • Congenital Heart Disease And Neurodevelopment
  • Congenital Heart Disease and Neurodevelopment
  • Copyright
  • Dedications
  • Contents
  • Contributors
  • Preface and Overview
  • THE IMPORTANCE OF STORIES
  • Lily's Story-Christopher McCusker
  • Katie's Story-Frank Casey
  • Other Stories of CHD
  • OVERVIEW OF THE BOOK
  • Acknowledgments
  • I - Hearts and Minds
  • 1 - Congenital Heart Disease: The Evolution of Diagnosis, Treatments, and Outcomes
  • CLINICAL PRESENTATION OF CONGENITAL HEART DISEASE
  • FETAL DIAGNOSIS
  • NEONATAL PRESENTATION
  • CYANOTIC CONDITIONS
  • ACYANOTIC CONDITIONS
  • LATER PRESENTATION OF CONGENITAL HEART DISEASE
  • THE DIAGNOSTIC TOOLS
  • CARDIAC CATHETERIZATION
  • SURGERY FOR CONGENITAL HEART DISEASE
  • CARDIOPULMONARY BYPASS
  • SUCCESS IN THE TREATMENT OF CONGENITAL HEART DISEASE
  • ADULT CONGENITAL HEART DISEASE
  • References
  • 2 - Historical Perspectives in Pediatric Psychology and Congenital Heart Disease
  • THE EMERGENCE OF PEDIATRIC MEDICINE
  • HISTORY OF CLINICAL PSYCHOLOGY
  • THE CONVERGENCE OF CLINICAL PSYCHOLOGY AND MEDICINE
  • PEDIATRIC PSYCHOLOGY: AN EVOLUTION IN RESEARCH AND CONCEPTS
  • CONGENITAL HEART DISEASE AND PEDIATRIC PSYCHOLOGY
  • References
  • II - Toward a Neurodevelopmental Phenotype
  • 3 - A Longitudinal Study From Infancy to Adolescence of the Neurodevelopmental Phenotype Associated With d-Transposition of the Great Arteries
  • 1-YEAR ASSESSMENT
  • 2½-YEAR ASSESSMENT
  • 4-YEAR ASSESSMENT
  • 8-YEAR ASSESSMENT
  • 16-YEAR ASSESSMENT
  • References
  • 4 - Neurodevelopmental Patterns in Congenital Heart Disease Across Childhood: Longitudinal Studies From Europe
  • THE AACHEN TRIAL OF SCHOOL-AGE CHILDREN WITH TETRALOGY?OF FALLOT AND VENTRICULAR SEPTAL DEFECT
  • THE BELFAST STUDIES
  • FACTORS MEDIATING RISK
  • CONCLUSIONS AND COMMENT
  • References
  • 5 - An Emergent Phenotype: A Critical Review of Neurodevelopmental Outcomes for Complex Congenital Heart Disease Survivors During Infancy, Childhood, and Adolescence
  • INTRODUCTION
  • INFANTS
  • General Cognition
  • Motor Skills
  • Language
  • Memory
  • Summary and Gaps in Knowledge
  • TODDLERS
  • General Cognition
  • Motor Skills
  • Language
  • Behavioral-Emotional Development
  • Audiology
  • Summary and Gaps in Knowledge
  • PRESCHOOLERS
  • General Cognition
  • Academic Achievement
  • Motor Skills and Sensorimotor Integration
  • Language
  • Processing Speed
  • ADHD Symptomatology
  • Behavioral-Emotional Development
  • Audiology
  • Summary and Gaps in Knowledge
  • SCHOOL-AGE CHILDREN
  • General Cognition
  • Academic Achievement
  • Executive Function
  • Attention
  • Memory
  • Motor Skills and Visual-Motor Integration
  • Language
  • Speech
  • ADHD Symptomatology
  • Behavioral-Emotional Development
  • Audiology
  • Summary and Gaps in Knowledge
  • ADOLESCENTS
  • Academic Achievement
  • Executive Function
  • Memory
  • Visual-Spatial Skills
  • Attention (ADHD Symptoms)
  • Behavioral-Emotional Development
  • Summary and Gaps in Knowledge
  • GENERAL DISCUSSION
  • Summary and Future Directions
  • ND and Psychosocial Impact on Health-Related QoL
  • A Clinical Agenda to Improve ND and Psychosocial Outcomes
  • A Research Agenda to Improve ND and Psychosocial Outcomes
  • References
  • III - Psychological Profiles and Processes
  • 6 - Is There a Behavioral Phenotype for Children With Congenital Heart Disease?
  • POTENTIAL PATHWAYS TO BEHAVIORAL MALADJUSTMENT
  • NOISE IN THE EVIDENCE BASE
  • THE CONGENITAL HEART DISEASE INTERVENTION PROGRAM
  • Behavioral Outcomes: Studies 1 and 2
  • Behavioral Outcomes: Study 3
  • TOWARD A SYNTHESIS OF PHENOTYPICAL PRESENTATION AND PROCESSES
  • LOOKING TOWARD INTERVENTION
  • References
  • 7 - A Family Affair
  • THE IMPORTANCE OF FAMILY FUNCTIONING FOR THE CHILD WITH CONGENITAL HEART DISEASE
  • PARENTS OF CHILDREN WITH CHD
  • FACTORS PREDICTING OUTCOMES FOR FAMILIES
  • SUMMARY: LEARNING POINTS AND MOVING FORWARD IN CLINICAL PRACTICE
  • References
  • 8 - The Adult With Congenital Heart Disease
  • INTRODUCTION
  • PSYCHOSOCIAL FUNCTIONING
  • Psychological Distress
  • Correlates of Psychological Distress
  • Unique Psychosocial Challenges
  • Transition
  • End-of-Life and Advance Care Planning
  • PSYCHOSOCIAL INTERVENTIONS
  • CONCLUSIONS
  • References
  • IV - Interventions
  • 9 - The Congenital Heart Disease Intervention Program (CHIP) and Interventions in Infancy
  • ADJUSTMENT IS A FAMILY AFFAIR
  • THEORETICAL PRINCIPLES
  • AN OVERVIEW OF CHIP
  • THE CHIP-INFANT PROGRAM
  • OUTCOMES
  • Infant Outcomes
  • Family Outcomes
  • CONCLUSIONS
  • References
  • 10 - Growing Up: Interventions in Childhood and CHIP-School
  • OVERVIEW
  • CHIP-SCHOOL: A RANDOMIZED CONTROLLED TRIAL4
  • CHIP-SCHOOL: INTERVENTIONS
  • INTERVENTION OUTCOMES AND COMMENTS
  • CONCLUSIONS AND CONTEXT
  • References
  • 11 - Healthy Teenagers and Adults: An Activity Intervention
  • BACKGROUND TO EXERCISE TRAINING IN CONGENITAL HEART DISEASE
  • MOTIVATING AND STIMULATING INCREASED EXERCISE ACTIVITY?IN ADOLESCENTS WITH CHD: THE BELFAST PROGRAM
  • COMMENT AND CONCLUSIONS
  • References
  • 12 - Conclusions and Future Directions for Neurodevelopmental Research and Interventions in Congenital Heart Disease
  • AN EVOLUTION IN UNDERSTANDING
  • A NEURODEVELOPMENTAL PHENOTYPE: MOTOR DIFFICULTIES?TO EXECUTIVE FUNCTIONING
  • PSYCHOLOGICAL ADJUSTMENT: THE IMPORTANCE OF PERSONAL?AND INTERPERSONAL COMPETENCIES
  • AN INTEGRATIVE MODEL OF UNDERSTANDING
  • EFFECTIVE INTERVENTIONS
  • FUTURE DIRECTIONS AND TRANSLATIONAL POTENTIAL
  • CONCLUDING COMMENTS
  • References
  • Index
  • A
  • B
  • C
  • D
  • E
  • F
  • G
  • H
  • I
  • L
  • M
  • N
  • O
  • P
  • R
  • S
  • T
  • U
  • V
  • Back Cover

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