Providing key information and insight into the experiences of people living with a diagnosis of young onset dementia, this book will increase the knowledge and skills of health and social care professionals in the early recognition, diagnosis and support of young people with dementia and their families.
The book explores the experiences of people living with a diagnosis of young onset dementia through detailed case studies, and gives learning points to implement in practice for the better provision of appropriate support and care. It explains the need for adapting services which are often designed for older people, and how the complicated diagnostic process can lead to misdiagnosis among younger people. Key issues are considered, including at-risk groups, work and dealing with potential loss of employment, changes in personal and family relationships, readjusting life expectations and plans, and social isolation.
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Hilda Hayo has been the Chief Admiral Nurse/CEO for Dementia UK since 2013, the charity who specialises in the provision and development of Admiral Nurses (specialist dementia nurses) to help families live as well as possible with dementia.
A dual registered nurse, she has over 35 years experience developing and leading dementia specialist teams. During this time, Hilda has held senior positions in clinical services, hospital management and higher education. She held Principal Lecturer posts at both London South Bank University and the University of Northampton, specialising in older people's mental health and community care.
Hilda is particularly proud of setting up and leading a nurse-led Younger People with Dementia service in Northamptonshire and still retains a small clinical caseload of families living with the effects of young onset dementia. She is currently completing a doctorate into "How and why does social connectedness change in families living with the effects of behavioural varient frontotemporal dementia?"
1. Introduction. 2. Promotion of health and prevention of ill health in reducing incidence of dementia. 3. Groups at increased risk of young onset dementia. 4. Why is it important to recognise and diagnose young onset dementia in a timely way? 5. The importance of timely post-diagnostic support and interventions following a diagnosis of young onset dementia. 6. Impact of young onset dementia on family relationships. 7. Lonely in a social world: Maintaining social connections in young onset dementia. 8. Meaningful occupation and activities. 9. Conclusions. Resources.
A significant addition which critically and constructively examines the key issues around Young Onset Dementia through lived and professional experience. Based upon knowledge being empowering this book will enhance the body of knowledge and help the movement towards greater support and understanding. I totally commend it to all interested in the subject. -- Keith Oliver, Alzheimer's Society Ambassador and KMPT Dementia Envoy
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