A Breast Cancer Journey

Living It One Step at a Time

Jennifer Douglas(Autor*in)

Bold Story Press

1. Auflage

Erschienen am 23. Mai 2023

352 Seiten

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Breast cancer is a journey none of us wants to take. When we hear the words, "You have breast cancer," our lives freeze. What do we do now?

Douglas was diagnosed with DCIS, stage zero breast cancer, after her second annual mammogram and quickly found herself navigating a new world filled with biopsies, treatment decisions, and overwhelming emotions. She discovered that stage zero breast cancer doesn't mean zero challenges.

Her journey, along with those of other breast cancer patients, are woven throughout each chapter. Alongside the personal experiences is information that will help you decipher complicated imaging reports and recover from your procedures as comfortably as possible.

A Breast Cancer Journey: Living It One Step at a Time will help you walk through your journey feeling encouraged and empowered with knowledge and support.

Auflage

1. Auflage

Sprache

Englisch

Verlagsort

La Vergne

USA

Produkt-Hinweis

Windows

Schlagworte

DCIS Breast Cancer Early-stage breast cancer DCIS Memoir coping with DCIS patient guide to early-stage breast cancer DCIS Breast cancer books DCIS Cancer stories DCIS stage 0 success stories DCIS cancer treatment DCIS treatment Stage zero breast cancer treatment What is Stage Zero breast cancer Early-stage breast cancer stories Coping with DCIS breast cancer How is DCIS treated?

ISBN-13

978-1-954805-41-5 (9781954805415)

Schweitzer Klassifikation

Medizin / Pharmazie Klinische Fachgebiete Innere Medizin Onkologie

Sachbuch / Ratgeber Körper / Gesundheit Krankheiten

DNB DDC Sachgruppen

Medizin, Gesundheit

BISAC Klassifikation

Health & Fitness Diseases / General Cancer

Medical Oncology Breast Cancer

Jennifer A. Douglas is a writer and breast cancer patient advocate who lives in Southern California. After the end of treatment for stage zero breast cancer, she felt called to encourage other patients through her writing and social media presence. She is active on her website, https://jenniferadouglas.com and on social media, @mmejendouglas. She was named a 2022 Breast Cancer Awareness Month influencer by the Susan Love Foundation.

Intro
Author's Note
Introduction
Writing the Book I Wanted to Read
Expect to Feel Overwhelmed
PART I Diagnosis & Surgery
1 First Emotion I'm Overwhelmed
Feeling Overwhelmed? You're Not Alone
My Journey: July 2019 The Abnormal Mammogram
Diagnosis Isn't Always a Straight Path
Others' Journeys Paths to Diagnosis
Mental Well-Being Managing Our New Priorities
Prioritize Medical Care & Accept Help
Manage the Logistics
Track Questions & Concerns
Organize Information Create a Breast Cancer File
Emotional Well-Being Raw & Unfiltered Feelings
2 Choosing a Surgeon & Getting a Second Opinion
My Journey Deciding to Ask for a Second Opinion
Listening to My Instincts
Getting A Second Opinion: Meeting My Oncologist & Breast Surgeon
Choosing a Medical Team for your Cancer Care
Who Might Be on the Cancer Care Team?
A Quick Recap
The Expense of Cancer Financial Toxicity & Treatment
Others' Journeys Second or Even Third Opinions
Mental Well-Being Proceed One Step at a Time
Emotional Well-Being Be Aware of your Emotions
3 Imaging Learning a New Language (Besides French) in My Forties
My Journey Imaging
Types of Imaging
Mammograms
Ultrasound
Breast MRI
What Is It Like to Get a Breast MRI?
Breast MRI Recap
Twists & Turns: An Unexpected Call from My Surgeon
Understanding Your Imaging Results
A Decoder Key: The BI-RADS Imaging Scale
BI-RADS Scale, Recommendations & Potential Patient-Facing Language
Breast Density
Choosing an Imaging Location & Receiving Results
Others' Journeys Imaging
Mental Well-Being Appointment Logistics & Communication
Emotional Well-Being Coping with Difficult Emotions during the Imaging Process
Frustration
Impatience
4 Biopsies, So Many Biopsies Is This Over Yet?
My Journey Biopsies
Why Are Biopsies Necessary?
Different Types of Core Needle Breast Biopsies
General Core Needle Breast Biopsy Procedure
Mammogram-Guided, or Stereotactic, Biopsy
Ultrasound-Guided Biopsy
MRI-Guided Biopsy
Preparation Tips for Biopsies Planning Ahead for Recovery
Transportation
Dark Sheets
Sports Bra
Activity Restrictions
Easy Meals
Cold Packs
Home Help
Caring for Young Children
Showering
Working
Slowing Down to Recover
Pain Management
Approximate Recovery Time
Others' Journeys Biopsies & Results
Mental Well-Being Waiting for Results & Planning Ahead
Results Management
Planning Ahead
Emotional Well-Being Recognizing Fear, Anxiety & Worry
Connect with the Medical Team
Meditate
Pray
Talk & Laugh with the Support Team
5 Diagnosis Day Really? Breast Cancer for My Birthday?
My Journey Results Day, Take Two
Understanding Pathology Information Revealed from Biopsy
Benign
Precancerous or High-Risk
Inconclusive
Cancer
Breaking the News
Telling My Family & Friends-One at a Time
Design Communication Strategies That Don't Exhaust You
Others' Journeys Sharing with Work
Breast Cancer & Children
Dealing with Opinions
Mental Well-Being Be Your Own Advocate
Learning a New Vocabulary as Part of Our Advocacy
Learning & Advocacy Help Manage Mental Strain
Emotional Well-Being Dealing with Strong Emotions
Keys for Dealing with Strong Emotions
When to Get Professional Help
6 Making a Surgical Game Plan
My Journey Mastectomy or Lumpectomy
Option Mastectomy
Types of Reconstruction
Mastectomy: Things to Consider
Option Lumpectomy
Reduction & Lift with Lumpectomy
Lumpectomy: Things to Consider
Genetic Testing
My Experience with Genetic Counseling
Why I Chose a Lumpectomy
Others' Journeys Surgical Decisions
Mental Well-Being Owning your Surgical Choice
Emotional Well-Being Anger & Frustration about Breast Cancer
7 Preparation for Surgery So Many Things to Do
My Journey Delayed Surgery Makes for Changes in the Plan
Before Surgery Day Make a Working To-Do List
Pre-Surgery Medical Appointments & Requirements
Information to Gather before Surgery
Administrative Tasks
Home & Family Management
Surgery Day Creating a Plan
Time Management
What to Pack for Surgery Day
Staying in Touch
Thinking Ahead for After Surgery
Arranging Post-Surgical Care
Anticipating Pain Management
Managing Time Off Work
Where to Look if You Don't Have Live-in Support
Others' Journeys Preparing for Surgery
Mental Well-Being Embracing Imperfection
Emotional Well-Being Fear of the Unknown
8 Surgery Day Facing the Unknown
My Journey Complicated Emotions
Localization before Surgery
Hospital Check-in: Ask for A Wheelchair!
Finally Getting a Room
Time for Surgery
Waking Up
The Flow of Surgery Day
Before Surgery
Surgery Time
Post-Surgery
Others' Journeys Unexpected Challenges during & after Surgery
Mental Well-Being Expecting the Unexpected on Surgery Day
Emotional Well-Being Voicing our Fears & Concerns
A Joyful Reunion at Home
PART II Post-Surgery Additional Treatment Decisions & Recovery
9 Soft Landing Optimizing for Early Recovery
My Journey Challenges in Delegating
Day 1: The Coffee Debacle
Children
Family & Friends
Setting up the Home for the Best Recovery Possible
Recovery Space
Primary Caregiver
Household Help
Food-We Needed Lots of It!
Do Housecleaning & Laundry before Surgery
Pet Care
Relocating Regularly Used Items to Lower Shelves
Practical Items for the First Few Days of Recovery
Post-Surgery Staying as Comfortable as Possible
Pain Management
Risk of Infection
Showering
Restroom
Sleeping
Light Physical Activity
Stretching
Clot Prevention
Fall Risk
Constipation
Surgical Drains
Others' Journeys Recovery from Surgery
Mental Well-Being Balancing Effort & Energy
Emotional Well-Being One Step Forward, Two Steps Back
10 The Beat Goes On Oncology & Post-Surgical Choices
My Journey Surgical Follow-ups
Transition to Oncology
Surgical Pathology Report
Diagnostic Tests to Plan Post-Surgical Treatment
Post-Surgical Treatments
Fertility
Radiation
Endocrine (Hormone) Therapy
Chemotherapy & Targeted Therapies
Others' Journeys Chemotherapy
Mental Well-Being Processing Information
Emotional Well-Being A Long Pathway to Acceptance
11 Radiation Bring Headphones
My Journey Meeting My Radiation Oncologist
New Care Provider The Radiation Oncologist
Choose a Convenient Treatment Location if Possible
Radiation Preparation Appointments
Initial Consultation
Radiation Planning & Mapping Appointment
Radiation Simulation Appointment
Treatment Time
Common Side Effects with Radiation
Fatigue
Skin Burning & Peeling
Others' Journeys Radiation Experiences & Tips
Mental Well-Being Dealing with the Mental Fatigue & Logistics
Emotional Well-Being Accepting a Season of Emotional Exhaustion
12 Breast Cancer Swirl Handling Complex Post-Treatment Emotions (Yours & Theirs)
My Journey Family Chaos
Breast Cancer Impacts Everyone
Cancer & the Kids
The Recovery Process We Don't Bounce Back Right Away
Others' Journeys Returning to Work
How Did I Reintegrate after Active Treatment?
Unwelcome Emotions Guilt & Mood Swings
Mental Well-Being Unexpected Brain Fog
Emotional Well-Being Acknowledging the Fears of Recurrence
13 Sex. Yes, Sex (or Lack Thereof)
Acknowledging Our Unique Situations
My Journey Breasts Were No Longer Symbols of My Femininity
Challenges of Enjoying Sex during Treatment
No Sexual Bounce-Back after Treatment
Communicate Clearly about Your Comfort
Others' Journeys Sex: a Difficult Topic to Discuss
Mental Well-Being Acceptance
Emotional Well-Being Talking Through Frustrating Feelings
Building Intimacy outside the Bedroom
Looking Ahead to the Future
14 Finding a New Beautiful Getting to Know the Post-Cancer You
My Journey Redefining my Personal Style
How Do We Feel & Look After Treatment?
Healing, Adjusting & Regaining Strength
Lifestyle Changes
Eating
Exercise
Scanxiety Will They Find Something New?
Others' Journeys Post-Treatment Changes
Mental Well-Being Now What?
Emotional Well-Being Not All Peachy in Post-Cancer Land
Choosing A Recovery Mindset Stumbling Block or Springboard?
Conclusion
Epilogue The Journey Continues: A Summer of Uncertainty & Another Surgery
Acknowledgments
Appendix: Resources
Books
Websites & Foundations
Metastatic Breast Cancer Resources
Useful Items During Treatment & Recovery
Additional Resources & Blogs
Endnotes

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A Breast Cancer Journey