While the sequencing of the human genome was a landmark achievement, the availability and manipulation of such a vast amount of data about our species has inevitably led to questions that are increasingly fundamental and urgent: now that information about human bodies can be transformed into a natural resource, how will and should we interpret and use it? With The Postgenomic Condition, Jenny Reardon draws on more than a decade of research in molecular biology labs, commercial startups, governmental agencies and civic spaces to examine the extensive efforts after the completion of the Human Genome Project to transform genomics from high tech informatics practiced by a few well-financed scientists and engineers to meaningful knowledge beneficial to all people. Through her in-depth profiles of genomic initiatives around the world, we see hopes to forge public knowledge and goods from blood and DNA meet the reality of limited resources and conflicting values.
Building the argument around the limits of liberal concepts of openness, information, inclusion, privacy, property and the public concepts that proved salient at different points in the unfolding story of efforts to make sense of human genomes Reardon shows how genomics challenges us to move beyond existing liberal frameworks to ask deeper questions of knowledge and justice. While the news media is filled with grand visions of future designer drugs and babies, The Postgenomic Condition brings richly into view these hard on-the-ground questions about what can be known and who and how we will live on a depleted but data-rich, interconnected yet fractured planet, where technoscience garners disproportionate resources.
Jenny Reardon is professor of sociology and the founding director of the Science and Justice Research Center at the University of California, Santa Cruz.
"How to think --how to make common meanings, how to live thoughtfully with oneself and others, how to consider things, actual things--in a world of endless genomic information and deluges of data is the key question of this marvelous, world-travelling, story-filled book. My favorite chapter takes the reader along Third Street in San Francisco, from glitzy new precision medicine and pharma buildings to a closed reproductive clinic that served mainly black and brown women. Good intentions, democratic and liberal idioms, and vast investments in digitization, but not in people, braid together to shape the heavily capitalized, sharply unequal postgenomic condition. This is a searching, research-rich, generous book, attentive to the dreams and worries of researchers and investors as well as ordinary people. It is a book that studies unending promises with a historically informed eye, while still holding open the possibility that genomic worlds are not fixed, not finished, but still in formation, still thinkable."--Donna Haraway, University of California at Santa Cruz "The Postgenomic Condition is a beautifully tendered plea for a revived approach to ethics in genomics - one that invites wide open discussion that includes the experiences and interests of traditionally marginalized groups."--Sarah S. Richardson, Harvard University
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